Irritable Bowel Syndrome Message Boards

I learned a lot of that from you, my dear!

Wow, I can't believe I've been eating GF for 16 months!

This second GI is not so hot, even though he does know that a firm CD diagnosis is not the only reason not to eat gluten. Believe me, he is not helpful and does not address all my other symptoms that I am having: edema in my legs and ankles (to the point where when I take off my socks there is like an inch difference where the indentation is) or my hair loss, or urine leakage). I suspect a thyroid or diabetic problem (these both run in my family) but the TSH came back in the normal range, so that was good enough for him. Although I've read that this does not always detect the problem. So, he is doing nothing about the bloating, edema, hair loss, etc. He doesn't take them seriously.

I will get a couple recipes I would like to try and you can give me the adaptation if that's okay? I know I've seen some on the boards that I'm dying to try. I'll post the link to them in another post. I would be so grateful if you could educate me on how to make them with GF flour and safe ingredients and still get an edible product!

I know they need more leavening, but not sure how much more for the muffins or bread recipes. Heck, don't even know what leavening is!

And I don't know how much xantham gum to add to these non GF recipes. That can be for another post though when I post the recipes I would like to try. Thank you again!

Also, need some tips on how to reduce the fat in GF recipes. The muffin mixes I bought contain 10 grams fat per muffin. I returned them! The GF recipes I see in cookbooks add lots of butter and oil.

I love my Kinnikinnick! Never heard of Manna from Anna

Do you buy this in a HFS or mail order it? Where do you get your current mix from or do you make it from homemade?

Okay, I'm either moving to the west coast or Atlanta!

How'd you hear about the Atlanta guy? Have you been there?

Maybe one day I'll be convinced that GF is necessary for me, but you know me well enough by now that if I read or hear anything that contradicts the GF eating for non diagnosed celiacs, I will always have my doubts. I hope to come to terms and piece with this someday, hopefully sooner than later. I think I continue to doubt it because even though I eat strict GF and IBS, I continue to have gas, bloating, constipation, cramps, and pain! If the GF eating would have helped these a little, if it was giving me some relief at all, I would have more faith in the GF diet necessity.

I even went to a specialist in celiac disease at University of Chicago where they have a reputable celiac clinic and the Doctor insisted that I could eat gluten after viewing my endoscopy xrays and both sets of bloodwork. This is why I think I still question it. Because she is supposedly an "expert". People come from far away to go to this clinic. But I didn't like her, and she was new to the clinic, so maybe she just has her own views on the "Golden Biopsy Standard" for eating GF. There are a lot of doctors who still believe that either all three tests need to be postitive or a positive endoscopy in order for the need to eat GF. I don't think any of them will ever agree. So, unfortunately, it's up to us to make an educated decision.

BTW, what did you mean when you said that turning C may be for the better? I think it sucks! But I think mine is due to my non functioning gallbladder which means it isn't releasing the bile to get the digestion going. Plus, I have delayed gastric emptying which also slow things down. Not much to do to treat those. At least my doc isn't doing anything or treating it. I wish I knew how to pull up your post and answer in another color right after the comment! I've tried but couldn't do it. It would be a heck of a lot easier than to keep scrolling down to reread what you wrote.

Thanks again for all your feedback Kandee. I think you are a very smart lady. Is that why they call you Doc?

Or do you actually have a PhD?

I'll get back to you on the recipes I'm interested in adapting, Okay? Thanks again, dear!

Love!

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~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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