Sorry I haven't been around much, my life is pretty crappy at the moment. I did see the internist, the one dr who I have always liked. Apparently the dork from U of M called her and she didn't even want to listen to a word I had to say. Very long story short, she basically told me the same thing, I am fat and depressed. Never mind that when I first got sick, I weighed 136 pounds!
She told me that none of the many drugs I was on were "life sustaining" her exact words and that I should stop them all and see a shrink! Needless to say I left there bawling an hour later. So, I stopped 90% of my meds. One was a blood pressure patch and three days later, I was so dizzy, I couldn't hear because the ringing in my ears was so loud. I stopped at the pharmacy and took my bp, it was 180/126. I looked like hell, all pale and sweating and they wanted to call an ambulance but I refused. The pharmacist said you are NEVER to just stop bp medication, she was furious when I told her my dr told me to.
After a couple of days of near stroke level readings, I put my catapress patch back on and my bp is back down to relative normal levels.
Mt pain is pretty bad because I am swollen up like a balloon from stopping the prednisone and the humira. I am not sleeping and have been on a crash diet, lost 4 pounds in 6 days. Overall, I look awful and feel worse.
I can not think straight, I am dizzy and light headed and can't even describe the extreme exhaustion.
I did call and set up an appt with an endocrinologist for Sept 20.
Sorry, not real cheerful but I can barely focus on the screen and I just want to curl up in bed and pull the covers over my head and stay there for a month or two.
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Taking it one day at a time.....
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