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All Boards >> Crohn’s Disease and Colitis Board Discussions


Reged: 01/22/13
Posts: 1
first flare ever/dietary question
      01/22/13 11:44 AM

Dear Forum,

I am experiencing my first flare ever, which began last Fri. night. Now that I know more about this range of diseases, I can see that I've been having symptoms for the last few weeks. I have been under more severe stress than usual, which I believe is what caused the flare, as well as my body struggling with a huge burden of mold in my current living situation, making my internal fungal and other infections flare.

I have read the symptom lists for IBS, Crohn's, and Ulcerative Colitis. I am 99% sure that I have Ulcerative Colitis, as I have every single symptom on that list. I am still working on getting a doctor's appt., but have been studying books all weekend.

Long before the flare began, I noticed that my digestion had become extremely slow, and my body no longer wanted to eat any meat at all, and it wanted much smaller meals.

Last Fri., when I ate some salmon, as soon as it hit my stomach, I had incredibly sharp, shooting pains. The next day, I had blood on my stools, and peed some blood from my anus.

Ever since, I've been working with my diet so that it is least irritating and least inflammatory.
I have a real Catch-22 to ask about. I have severe chemical, electrical, and mold sensitivities, chronic fatigue, multiple food allergies, dysbiosis, and multiple chronic infections. I've been chronically ill for over a decade. I get strong fatigue and brain fog, for at least 3 hours after meals, when I eat any di-saccharides, grains, or starches. So my doctor told me to try the SCD or GAPS diets, which take out all di-saccharides, grains, and starches. As soon as I began such a diet, I no longer had fatigue or brain-fog for hours after meals. The theory is that those specific types of carbohydrates feed your chronic infections, which certainly seems to fit, in my experience.

Now that I'm having a flare, and following Heather's soluble fiber guidelines (I really don't want to eat meat or fat or pointy vegetables or nuts, either -- my body balks at the idea), I am having strong fatigue, brain-fog, and brain inflammation issues again.

I'm writing to ask if there are any specialists who specialize in diets for IBD flares that are SCD-compliant.
I do not have my own kitchen right now, or a safe place to live, but I can think of ideas for adjusting my flare diet to be SCD-compliant -- they're just hard to implement right now -- like pureed rutabaga, pureed squash, meat soups cooked for several hours, pureed SCD-compliant beans. But I am wondering if there are others who have already paved the way before me.

Thank you for any help!

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