Re: Just a few things about Crohn's Disease
05/10/09 05:48 PM
I think another user's suggestion to find a support group is extremely important. I have had stomach problems for many years and was very embarassed as a teenager. While I'm sure my mom would have been more than happy to help me and talk to me, I was horrified. You are talking about very embarassing symptoms-even to talk about with your mom. It may even be helpful to point him to this message board so he can talk to other people who have the same problems. Let him know you are there if he wants to talk to you but that there are other people who know exactly what he's going through and can help. Also make sure he can talk annonymously-meaning without you reading-if he chooses.
It is going to take time-I'm now 23 and still get mad that I have to take medicines and follow special diets. It is so frustrating to know you can't eat like other people. It is especially hard as a teenager when you just want to be like everyone else. I've come to terms with it, but it took me a very long time to figure out that it is something I have to do. You can't force him to take the medicine, but it may be helpful if his doctors explain exactly why he needs it and what it does.
I wish you and your son the best of luck. I have been right where he is, and I can say it is very scary. While you're relieved to finally know what is happening to you, you're terrified about what it means for your future and your social life.
If you haven't already, I strongly suggest purchasing Heather's books for him to read that will help him understand what is going on and what can help him. It is also nice to know even if nobody you personally know has this problem, there are many people in the world who do.