Help For Irritable Bowel Syndrome (IBS) - Education, Support, & Self Help for Irritable Bowel Syndrome
Heather & Company View Cart
Shop for IBSIBS Message BoardsIBS News & ReviewsStore Finder
IBS Diet & Recipes
IBS Books
IBS Supplements
Yoga for IBS
Hypnosis for IBS
Tummy Teas
Get The IBS Diet Cheat Sheet
Get Trigger Foods, Safe Foods, Ten Commandments of Eating for IBS, More!

Enter First Name:

Enter Email:

We value your privacy

All Boards >> Crohn’s Disease and Colitis Board Discussions


Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan
Arthritis and eye inflammation
      08/14/06 09:45 AM

I was diagnosed with serum negative ra. That means that although my blood work was negative for the rheumatoid arthritis anti-body they still believed I had it because I have a lot of the classic symptoms.

I'll try not to write a book here but the general overview is that I've had IBS with constipation since I was 16. Colonoscopy and laparoscopic surgery at 18 confirmed nothing more "serious."

In September 2004 had a barium swallow with follow through and abdominal cat scan and upper gi and everything ok, other than a little reflux.

Other than the basic tummy pains, I was healthy and took miralax daily to help the C.

A few years ago, I wanted to start a family. Ended up with several unexplained miscarriages. Went to reproductive endocrinologist for full work-up, everything "girly" is fine. Went on high dose hormone therapy and daily fertility shots.

The fertility shots were last summer. During which, my hands and feet swelled and I started having general aches and pains and was tired and just not well. Told not to worry, just the hormones. Got pregnant with twins last September. Things really swelled up but told it was because I was pregnant.

At the same time, my eyes turned red and hurt like hell. Ophthalmologist said it was uveitis and gave me steroid eye drops. Every couple weeks when I tried to stop the eyes drop, my eyes would flare up again.

I saw a rheumy while I was pregnant last November and he said fibro, come back after the baby.

I lost the twins in December, again unexplained as they were healthy identical girls.

Right after I lost the twins, my whole body flared. My hands looked like club feet and you couldn't even count my toes they were so swollen. I hurt all over and felt like crap. Went back to rheumy told was just depressed. Uh, well YES, I AM depressed, I just lost my 4 and 5th babies but there is something wrong with me!!!

After a few more visits and x-rays he diagnosed the serum negative ra. Stared me on placquenil in January. A couple of months went by with no improvement. Eyes continued to flare and need steroid eye drops.

I than started having chest pains, diagnosed as costochondritis-common in ra people. Tried alsulfadine and it made me sick, had to stop after a week. I than started having terrible D. Obviously stopped the daily miralax. Started on Enbrel injections in May and Imuran the end of may.

My cornea's are warping from all the steroid eye drops. I started throwing up blood and pooping blood. Told it was gastritis. I felt sick and horrible all the time, very nausous and was throwing up many times a` day. Stopped the Imurn a few weeks ago and the nauseous is a lot less and only occasionally throw up now.

My hemoglobin has dropped and now I have a chronic terrible headache, migraine at times. Very tired and weak. My rheumy called last week and said she doesn't think its ra but crohn's.

My boss happens to be friends with a crohn's specialist and he took the time to call me last week and after talking to him for a few minutes he said he agreed. I have an appt with him on Wednesday. I'm still having lots of d, sometimes 3-4 times a day others 15 times a day. I've never heard of anyone else though having all the arthritis symptoms and eye problems although the crohns doc said yes, it can cause those symptoms.

Has anyone ever heard or known of anyone to have the arthritis symptoms so bad? My last x-rays done last month showed bone erosion's in my fingers, toes and knees.

Since started steroids about 3 months ago, I've actually lost about 16 pounds. Now, I need to lose the weight but steroids make you gain not lose. I stopped the enbrel injections almost a month ago and they are taking about either humira or remicaid to be started in the next week or two.

Does this sound like crohns to you guys???

Taking it one day at a time.....

Post Extras Print Post   Remind Me!     Notify Moderator

Entire thread
Subject Posted by Posted on
* Arthritis and eye inflammation michele 08/14/06 09:45 AM
. * Re: Arthritis and eye inflammation jilan   01/09/15 03:53 AM
. * Re: Arthritis and eye inflammation JLL24   08/14/06 09:54 AM
. * Re: Arthritis and eye inflammation michele   08/14/06 11:20 AM

Extra information
0 registered and 1 anonymous users are browsing this forum.

Moderator:  Heather 

      You cannot post until you login
      You cannot reply until you login
      HTML is enabled
      UBBCode is enabled

Thread views: 6941

Jump to

| Privacy statement Help for IBS Home

UBB.threads™ 6.2

LEGAL DISCLAIMER - This website is not intended to replace the services of a physician, nor does it constitute a doctor-patient relationship. Information on this web site is provided for informational purposes only and is not a substitute for professional medical advice. You should not use the information on this web site for diagnosing or treating a medical or health condition. If you have or suspect you have an urgent medical problem, promptly contact your professional healthcare provider.

Any application of the recommendations in this website is at the reader's discretion. Heather Van Vorous,, and Heather & Company for IBS, LLC are not liable for any direct or indirect claim, loss or damage resulting from use of this website and/or any web site(s) linked to/from it. Readers should consult their own physicians concerning the recommendations on these message boards.

Home | Shop for IBS | IBS Message Boards | IBS News & Reviews
IBS Diet & Recipes | IBS Books | IBS Supplements | Yoga for IBS | Hypnosis for IBS
IBS Tummy Teas | Irritable Bowel Syndrome Glossary

About Us | IBS Links | Search this Site | Site Map | Shipping & Returns | Privacy & Security
Contact Us | For Doctors & Dietitians | Wholesale | Co-packing Services

1999-2009, Heather Van Vorous,, Heather & Company for IBS, LLC.
All information & art is proprietary and may not be duplicated.
All rights reserved.

Legal & Medical Disclaimer

Website Design