Help For Irritable Bowel Syndrome (IBS) - Education, Support, & Self Help for Irritable Bowel Syndrome
Heather & Company View Cart
Shop for IBSIBS Message BoardsIBS News & ReviewsStore Finder
Home
IBS Diet & Recipes
IBS Books
IBS Supplements
Yoga for IBS
Hypnosis for IBS
Tummy Teas
Get The IBS Diet Cheat Sheet
Get Trigger Foods, Safe Foods, Ten Commandments of Eating for IBS, More!

Enter First Name:

Enter Email:

We value your privacy


All Boards >> The Living Room

GaGa

Reged: 01/12/08
Posts: 534
Loc: Florida
Re: Sarcoidosis
      08/10/08 05:12 PM

One of the girls who posts on here has it..."Michele". I've read several of her posts and I believe it affects your lungs and other organs.... Here's a portion of one of her posts:
Quote:

I first presented with multiply miscarriages, most unlikely due to the sarc and probably due to blood clots even though my clotting tests are normal. I was recently treated for two pulmonary embolisms and 3 deep vein thrombosis, all types of blood clots and usually the pe's are lethal. While going through the fertility work-up and treatments, I started to have swelling and pain in my hands and feet, they said it was hormones. Than the constant fatigue, they said stress. Than I got pregnant for a 4th time with twins and while pregnant I got a raging case of uveitis (eye inflammation.) they called that a fluke. Lost the twins and blew up everywhere like a blow fish, than I was just depressed. Many, many, many doctors later and many wrong dx later, I finally know what I have, chronic progressive sarcoidosis.

For me, its painful almost everyday, my breathing is very limited, I have constant extreme fatigue, memory problems, the list is very long. At this very minute, I sit at my desk hooked up to a heart monitor. They are trying to figure out how much damage it has already done to my heart. I get remicade treatments for it every 4 weeks and things are improving a bit.



Not a very nice disease at all!! I perceive her as a very strong person, though...

--------------------
"I Will Survive! :-)... I shall live and not die and declare the works of The Lord..."

Edited by GaGa (08/10/08 05:13 PM)

Post Extras Print Post   Remind Me!     Notify Moderator

Entire thread
Subject Posted by Posted on
* Bernie Mac had sarcoidosis Nelly 08/09/08 07:08 AM
. * Re: Bernie Mac had sarcoidosis Mary_V   08/11/08 04:47 AM
. * Re: Bernie Mac had sarcoidosis michele   08/11/08 08:25 AM
. * Re: Bernie Mac had sarcoidosis ChristineM   08/17/08 10:16 AM
. * Re: Bernie Mac had sarcoidosis Lisa Marie   08/11/08 04:24 PM
. * Re: Thanks Lisamarie michele   08/12/08 09:56 AM
. * Re: Michele GaGa   08/11/08 04:08 PM
. * Re: Thanks Dorothy michele   08/12/08 09:58 AM
. * Re: Bernie Mac had sarcoidosis fancymom   08/11/08 02:06 PM
. * Re: Fancymom michele   08/11/08 02:17 PM
. * sarcoidosis awareness! Nelly   08/11/08 11:12 AM
. * so sad Jordy   08/10/08 04:01 PM
. * Re: Sarcoidosis GaGa   08/10/08 05:12 PM
. * Re: Sarcoidosis Jordy   08/13/08 12:40 PM

Extra information
0 registered and 79 anonymous users are browsing this forum.

Moderator:  Heather 



Permissions
      You cannot post until you login
      You cannot reply until you login
      HTML is enabled
      UBBCode is enabled

Thread views: 2045

Jump to

| Privacy statement Help for IBS Home

*
UBB.threads™ 6.2

LEGAL DISCLAIMER - This website is not intended to replace the services of a physician, nor does it constitute a doctor-patient relationship. Information on this web site is provided for informational purposes only and is not a substitute for professional medical advice. You should not use the information on this web site for diagnosing or treating a medical or health condition. If you have or suspect you have an urgent medical problem, promptly contact your professional healthcare provider.

Any application of the recommendations in this website is at the reader's discretion. Heather Van Vorous, HelpForIBS.com, and Heather & Company for IBS, LLC are not liable for any direct or indirect claim, loss or damage resulting from use of this website and/or any web site(s) linked to/from it. Readers should consult their own physicians concerning the recommendations on these message boards.



Home | Shop for IBS | IBS Message Boards | IBS News & Reviews
IBS Diet & Recipes | IBS Books | IBS Supplements | Yoga for IBS | Hypnosis for IBS
IBS Tummy Teas | Irritable Bowel Syndrome Glossary

About Us | IBS Links | Search this Site | Site Map | Shipping & Returns | Privacy & Security
Contact Us | For Doctors & Dietitians | Wholesale | Co-packing Services

1999-2009, Heather Van Vorous, HelpForIBS.com, Heather & Company for IBS, LLC.
All information & art is proprietary and may not be duplicated.
All rights reserved.

Legal & Medical Disclaimer

Website Design