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All Boards >> Crohn’s Disease and Colitis Board Discussions

Pages: 1

Reged: 12/04/12
Posts: 3
New user / old colitis
      #368746 - 12/04/12 11:44 AM

Hi, not sure how to use forum, I wrote heather over ten years ago, when she was still in New York, I think, and she told me at the time that if you have certain symptoms it probably wasn't just IBS. I am seriously at the end of whatever rope I had left, and I just wanted to know what you guys do with severe colitis , diarrhea predominant. Are there doctors who treat mystery cases? Ugh, am so stunned by latest doctor, I can't breathe. Thanks for any input, and peace and healing to you all.

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Reged: 03/13/05
Posts: 5495
Re: New user / old colitis new
      #368752 - 12/05/12 09:20 AM

Welcome back to the boards

What diagnosis did you doctor give you?

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Reged: 12/04/12
Posts: 3
Re: New user / old colitis new
      #368757 - 12/07/12 07:00 AM

Hi there, I have definitive multiple sclerosis, endometriosis and former untreated Lyme disease. I have IBS but everyone can during stress, which when I originally wrote Heather directly, she said things needed to be ruled out. As far as testing and symptoms, my colitis disappears every single time I get steroids for ms or steroid injections for herniated discs, it does wear off after a short bit. I am always positive for WBC white blood cells in stool also called lactoferrin. I have had c. Diff four times. I am vitamin b.12, vitamin d, and vitamin a deficient. Frequent kidney stones. I have a thirty pound weight loss. I had my gallbladder out in 1998 and questran makes D worse. Hysterectomy and oopherectomy for severe endometriosis in 2006, I am 45 now, and I swear I will die with the tombstone that says my colitis is not just irritable bowel. First colo revealed microscopic colitis, second showed rectal inflammation, and gastritis. I just had a capsule endoscopy and the doctor told me I am fine, I was like wait what about the endometriosis, he said, nope, this is just irritable bowel. I am like what about my ms, maybe, and he said let me stop you right here, the only thing I am going to offer you is an anti.depressant. I have a long, involved medical history but the worst is my colitis. I actually look forward to my cervical injections, because I know colitis relief is around the corner. My hair is falling out and thinning, and my butt is always sore from the constant D. I am literally at wits end, no one will help me. My family feels bad for me. Oh, in addition, I have to be hospitalized with prep because of severe LoSo prep, GO lightly, MoviPrep, OsmoPrep, Fleets Prep, Soda Prep....I think I just barely function so prep resets my ms or electrolytes. Lastly, immodium hasn't worked since I first had c. Diff in 1999. I take only Lomotil daily, but a lot of it. If I didn't go to acupuncture once per week, I am sure I wouldn't be here writing you guys. Thanks for listening. I just can't keep doing this. No doctor believes its inflammatory.

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Reged: 01/06/09
Posts: 28
Re: New user / old colitis new
      #368784 - 12/12/12 03:39 PM

Where/How in all this history -- was the diagnosis of Microscopic Colitis forgotten? MC can ONLY be diagnosed by biopsy’s which are taken from the colon during a colonoscopy or sigmoidoscopy. Did you receive any treatment for MC? If so, how were you treated for MC? Were you told that MC is a chronic condition? MC is an inflammatory bowel disease, and is thought to be an auto-immune condition. MC is NOT a condition which could be seen, or diagnosed, by use of capsule endoscopy.

The acronym IBS stands for Irritable Bowel Syndrome. This means a person has several of a ‘collection or constellation of symptoms’ which causes problems and discomfort associated with the G.I tract -- but no abnormal pathology can be found anywhere in the G.I tract.

The acronym IBD stands for Inflammatory Bowel Disease which means that a pathological disease state has been found, and diagnosed. Microscopic Colitis (MC) is an IBD.

These 2 terms should not be confused. If you are seeing a Physician who uses them indiscriminately, perhaps it would be better to find another Physician.

Many of the symptoms of MC may be the same as those symptoms which are included in the descriptions of IBS. However, unmanaged MC can have serious dehydrating and debilitating affects.

Vitamin deficiencies are not unusual with MC, and supplementation to the point of correction is encouraged. Dehydration to the point of needing medical care is a major issue -- which is possible with MC.

You may want to investigate:



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Reged: 12/04/12
Posts: 3
Re: New user / old colitis new
      #368843 - 12/28/12 05:18 AM

Hi, thanks. Always thought they were overlooking that dx. I only had that dx on first colo, second and third only showed gastritis and some rctal lymph WBC. No one believes me since the colo and capsule were fine. This is beyond ridiculous since everyone thinks you are crazy with just horrible D. Thanks. Still at end of rope but appreciate your comments.

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