official diagnosis obtained....
#66046 - 04/29/04 04:11 PM
|
|
|
|
jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
|
|
|
fibromyalgia.
don't know how i feel about that yet, but i thought i'd let you know.
(and i thought life sucked when "all" i had was IBS...)
--------------------
Print
Remind Me
Notify Moderator
|
|
|
Oh Jen...... I'm so sorry!! {{BIG HUGS}}
--------------------
www.facebook.com/shell.marr
www.myspace.com/shellmarr
Print
Remind Me
Notify Moderator
|
Hey Jen
#66060 - 04/29/04 04:38 PM
|
|
|
|
peaches
Reged: 09/28/03
Posts: 1183
Loc: Fort Wayne, Indiana
|
|
|
Hey I just looked up some info about it since it's been talked about quite a bit, so I think I'm up to date quite a bit. This site is what really helped me:
Fibromylagia
Anyways, I'll be praying for you to get better! Have you started any treatments yet?
--------------------
It comes down to the art of living on [color/red]
Print
Remind Me
Notify Moderator
|
Re: Hey Jen
#66064 - 04/29/04 04:45 PM
|
|
|
|
|
jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
|
|
|
thanks! i'm going to check that link in a few, after i am done making my rounds here. 
right now, the only "treatment" i have been given is a few prescriptions. one that i started 2 weeks ago to help me sleep more deeply, and now today a new one for pain. i'm to go back to the doc in a month to be checked again. i want that time to do some more reading so i know more about it and what to expect. i'll demand some more/better treatments then after i've "reviewed." 
see how much faith i have in Doctors?
--------------------
Print
Remind Me
Notify Moderator
|
Fibro
#66073 - 04/29/04 05:00 PM
|
|
|
|
Linz
Reged: 09/01/03
Posts: 8242
Loc: England
|
|
|
Well, that sucks Jen, but at least you know. When my life has calmed down a bit I'm going to get a referral to a rheumatologist too. Take it easy girlfriend. We've got to not make life hard for ourselves!
What are you on for the pain? I could with some of that atm. Sitting at a desk all day (or night) is the worst thing for my joints, don't know abut you. I wonder if acupuncture can really help??? 
Peaches... thanks for that link, it's got some really good info.
Print
Remind Me
Notify Moderator
|
Re: Hey Jen
#66074 - 04/29/04 05:00 PM
|
|
|
|
Kandee
Reged: 05/22/03
Posts: 3206
Loc: USA, Southern California
|
|
|
I'm so sorry..........and I can well imagine you have mixed emotions about it.
Have you looked into T-3 (?) a thyroid med I keep seeing being used for Fibro and CFS.
I'm going thru subacute thyroiditis right now and it is pure H*. Will take time to get over but in the mean time I have fibro symptoms plus a whole lot of other scary things I hate to think about.
I wish you well working with your doc. You're smart so you'll get a handle on what is best for you I'm sure.
Set those docs straight..........they need it!!!!
Kandee
--------------------
Print
Remind Me
Notify Moderator
|
Kandee
#66076 - 04/29/04 05:02 PM
|
|
|
|
|
Linz
Reged: 09/01/03
Posts: 8242
Loc: England
|
|
|
What do you know about the thyroid meds and Fibro? I've seen this mentioned in loads of places but with no details  . Any info would be gratefully received! My thyroid's certainly not happy, but the function test came back okay.
Print
Remind Me
Notify Moderator
|
Re: Hey Jen
#66079 - 04/29/04 05:04 PM
|
|
|
|
|
jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
|
|
|
Thanks, Kandee....
actually, i have an article about T3 meds in my little medical folder. that's one of the things i'm going to bring up at my next appointment. this is a new doc, so i wanted to just follow instructions the first visit so i look compliant, then i'll wreak havoc at the 2nd visit. they always greatly underestimate me. their mistake!
--------------------
Print
Remind Me
Notify Moderator
|
Re: Hey Jen
#66084 - 04/29/04 05:14 PM
|
|
|
|
|
Linz
Reged: 09/01/03
Posts: 8242
Loc: England
|
|
|
Do you get bugs much? I got totally mashed (I like this word - its descriptive! ) last fall when what I know now as Fibro went mental cos I kept on getting bugs and being wiped out for weeks at a time with each one.
Now I take Echinacea and 500mg Vitamin C a day and it really helps. I'd recommend the Echinacea even if you can't stomach the Vit C. Just a thought.
I'm gonna go away now cos my joints are seizing up and I have 5 more hours of work typing to do! 
Print
Remind Me
Notify Moderator
|
Re: Hey Jen
#66086 - 04/29/04 05:19 PM
|
|
|
|
|
jenX
Reged: 08/11/03
Posts: 3252
Loc: Richmond, VA
|
|
|
actually, it's funny. i was just saying to a friend how amazing it is that aside from my IBS and the fibro stuff, i haven't been sick in over a year and a half. no stomach virus, no colds, no flu. (*knock on wood!*)
--------------------
Print
Remind Me
Notify Moderator
|
Posts
