Irritable Bowel Syndrome Message Boards | Re: The about you section on your blog says ..

Yeah it was pretty ridiculous. I had to beg to get that Celiac blood test. I begged them for more tests before going gluten-free, knowing that I'd probably never be able to do them in the future. They refused. I was put on a waiting list for another GI and in the meantime went gluten-free. By the time I saw the next one, who probably would have agreed to more testing, I wasn't willing to eat gluten again. It really took me until just recently to fully believe I had Celiac and not a gluten-intolerance or IBS.

One good thing to come of it though, after going gluten-free didn't fix all my symptoms, I just kept searching until I figured out what worked for me. I think if I had been given the label Celiac I might have stalled at the gluten-free diet for a while wondering why I wasn't getting better.

Interesting you know 4 people with negative blood tests. I didn't know anyone except myself. Lately I've know a few friends having the blood test done and stopping at that when they get a negative result. I'll be sure to let them know, might be worthwhile for them to have a scope/biopsy done while they're eating tons of gluten still.

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Kat

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