I am glad he is being thorough but he is only looking at things from an infectious angle. He didn't bother to read my records I dropped off more than two weeks in advance of my appt or even read my history that I typed out for him, in an easy to digest form.
He basically said all I am going to do is make sure you have just regular sarcoidosis and that nothing else is causing the granuloma's associated with sarc. Ok. At least he is up front about what he is going to do and not do for me.
I dropped of the first of three stool samples last night and now have to wait for a bad tummy day with D as he said to be sure to give them a good sample from a bad day! LOL! I had the blood work done, not too bad, only 11 vials. Now, I wait.
I see the head guy at a big hospital in the area here a week from Monday to see what he says about the whole thing. I hope my blood work is back by than.
I am feeling better than I was. Apparently this disease can wax and wane so not sure if I am in a little bit of a remission. I mean, I have been battling this flare up of the uveitis in my eyes for over a month, my hair is still falling out, my hands are still swollen to the point that people ask me whats wrong with them, the fatigue and brain fog are daily battles, my joints still hurt, etc. But, my overall pain level is down so its all relative!
I have been REALLY trying to lose weight and I am getting very frustrated. I have a bridesmaid dress to fit into in a few months and unless I lose about 20 pounds its not going to happen. The bride picked out a style that doesn't come in plus sizes!
They are still trying to find the right psych meds for me. I just started cymbalta this week, I know it takes time but I am feeling pretty low-I hope it kicks in soon. There really isn't any other option as far as AD's go because of my heart condition.
-------------------- Taking it one day at a time.....
Posts
Re: thanks everyone
