Well, apparently a mediastinal biopsy is not enough to positively rule sarcoidosis as the dx!!!!!! I just saw the infectious disease doc and he informed me that since sarcoidosis is a noncaseating granuloma disease that other things can cause these same type of granulomas!
So, I have a script for about 52 more vials of blood to be drawn and stool sample kits to be done on three different days, which means three different trips to the hospital lab to drop the off since they can not be refrigerated. He is testing for every fungi, parasite, organism, infection and other creepy crawlies that we don't want to be host to.
Hmmm, I guess its good that we are making sure of the dx but I thought we had already done that! I do not know what it means if I have any of the above said creepy crawlies as he wanted to wait for test results to go over that.
This testing is to be done on top of the urine test I am doing this weekend. I get to pee in a jug for 24 hours, than mix it into little vials and have UPS overnight it to some lab that is supposed to give me the low down on my hormones and not even sure what else.
After the above tests, I just really can't imagine what more they can test!! I am still sticking to the sarcoidosis dx until I hear otherwise as the thought of parasites and other unwanted guests making home in my body is just to icky!
Well, maybe if it is a bug or fungus, they can finally kill the crap and be done with it so I can feel better. Its been a long three years! Please let these tests give a definitive answer, preferably one that is treatable!
-------------------- Taking it one day at a time.....
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More testing
I just saw the infectious disease doc and he informed me that since sarcoidosis is a noncaseating granuloma disease that other things can cause these same type of granulomas!
