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Re: Fridays Endoscope Update
      09/19/06 03:45 PM
Susie2

Reged: 08/07/06
Posts: 158
Loc: Pomona California

Nice pedicure. Love that color. I so need a pedicure. I've been slapping on the polish myself because I'm afraid to go to a nail salon. Concerned about picking up some gross infection.

Wow your symptoms supercede mine and I thought I was the queen of weird unexplained symptoms. Actually my friend Bonnie who has diagnosed lupus has some strange variation and the docs don't know what to do with her. So even if one gets a diagnosis there is no guarantee of a solution. I find that things change. In 1997 I had weird rheumitoid type symptoms. I had a positive lupus test (isn't that the ANA - don't remember) but with low titers. High sed rate and c reactive protein. I was in the most excruciating pain. I would lie on ice packs. Sitting was even hard. Finally one doc diagnosed me with polymyalgia rheumatica. Now, who has ever heard of that!
It lasted about 1 1/2 years. Now I have some residual aches more like fibromyalgia or myofascial pain. And I don't think my ANA shows lupus anymore. I did notice on my hospital labs that my sed rate is up (67). My bad IBS flares seem to be associated with my thyroid going low. And even once it is back where it should be it takes the body awhile to get out of the flare its in.

I think the docs are just as frustrated as we are. At least the good ones. Some just harden and blame the patient and find something to pin the blame on - like anxiety or depression or bad habits or drugs somebody else is prescribing. What I would appreciate is to be listened to, believed, and treated kindly. What a difference that would make.

You probably shouldn't try a new anti-depressant now while you are tapering off the steroids. My P doc says one change at a time. I get to where I want to quit everything or try a whole new bunch of things.

I couldn't get my colon pics up. Hubby will try to do that this pm. I think I can email them though.

Just look at all the knowledge you are gaining about guts and joints. Maybe you should start a consulting business.



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Entire thread
* Fridays Endoscope Update
michele
09/18/06 07:36 AM
* Michele

09/19/06 10:20 AM
* Re: Michele
michele
09/19/06 10:35 AM
* Re: Fridays Endoscope Update
littlelani
09/19/06 03:59 AM
* Re: Fridays Endoscope Update
michele
09/19/06 07:19 AM
* Re: Fridays Endoscope Update
Shell Marr
09/18/06 01:34 PM
* Re: Fridays Endoscope Update
michele
09/18/06 02:35 PM
* Re: Fridays Endoscope Update
Susie2
09/18/06 01:23 PM
* Re: Fridays Endoscope Update
michele
09/18/06 02:44 PM
* Re: Fridays Endoscope Update
Susie2
09/18/06 08:03 PM
* Re: Fridays Endoscope Update
michele
09/19/06 08:10 AM
* my suggestion
Betharoo
09/19/06 05:42 PM
* Re: my suggestion
michele
09/20/06 11:01 AM
* Re: my suggestion
Betharoo
09/20/06 11:31 AM
* Re: Fridays Endoscope Update
Susie2
09/19/06 03:45 PM
* Re: Susie2
michele
09/20/06 11:13 AM
* Re: sed rate
Susie2
09/20/06 12:15 PM
* Re: sed rate
michele
09/20/06 01:08 PM
* Re: Fridays Endoscope Update
Shell Marr
09/19/06 03:34 PM
* Re: ShellMar
michele
09/20/06 11:18 AM
* Re: Fridays Endoscope Update
happystamper
09/18/06 01:20 PM
* Re: Fridays Endoscope Update
michele
09/18/06 01:22 PM
* Oh Michele!
Stephie
09/18/06 12:20 PM
* Re: Oh Michele!
michele
09/18/06 01:13 PM
* Re: The nurse called
michele
09/18/06 11:57 AM
* An idea
Nelly
09/18/06 01:29 PM
* Re: An idea
michele
09/19/06 07:16 AM
* Re: An idea
Nelly
09/19/06 01:43 PM
* Re: An idea
michele
09/19/06 02:20 PM
* Fibro & Fatigue Center
Nelly
09/19/06 03:30 PM
* Re: Fibro & Fatigue Center
michele
09/20/06 11:30 AM
* Good step!
Nelly
09/20/06 06:52 PM
* Re: Good step!
michele
09/21/06 08:02 AM
* Re: Fibro & Fatigue Center
Tissy
09/20/06 05:31 PM
* Re: Fibro & Fatigue Center
michele
09/21/06 07:59 AM
* Re:Aw, honey!!!
Yoda (formerly Hans)
09/18/06 01:09 PM
* Re:Aw, honey!!!
michele
09/18/06 01:18 PM
* Re: Fridays Endoscope Update
Snowy
09/18/06 10:49 AM
* Re: Fridays Endoscope Update
michele
09/18/06 11:47 AM
* Re: Fridays Endoscope Update
Toady
09/18/06 10:38 AM
* Re: Fridays Endoscope Update
michele
09/18/06 11:49 AM
* Re: Fridays Endoscope Update
Angela E.
09/18/06 10:23 AM
* Re: Thanks Angela
michele
09/18/06 11:46 AM
* Re: Fridays Endoscope Update
feelinggood
09/18/06 09:57 AM
* Re: Fridays Endoscope Update
michele
09/18/06 10:08 AM
* Re: Fridays Endoscope Update
Sand
09/18/06 08:37 AM
* Re: Fridays Endoscope Update
michele
09/18/06 08:43 AM
* Re: Fridays Endoscope Update
jen1013
09/18/06 08:16 AM
* Re: Fridays Endoscope Update
michele
09/18/06 08:32 AM
* capsule endoscopy
jen1013
09/18/06 08:15 PM
* Re: capsule endoscopy
michele
09/19/06 08:29 AM
* Re: capsule endoscopy
jen1013
09/19/06 09:41 AM
* Re: capsule endoscopy
michele
09/19/06 09:59 AM
* Re: capsule endoscopy
jen1013
09/19/06 06:56 PM
* Re: capsule endoscopy
michele
09/20/06 11:36 AM
* Re: Fridays Endoscope Update
atomic rose
09/18/06 07:41 AM
* Re: Fridays Endoscope Update
michele
09/18/06 07:55 AM

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