The tentative lupus diagnosis came after a positive ANA and anti-DNA. I'm also super sensitive to the sun. I have solar urticaria which is a fancy way of saying that I break out in welts when I go out in the sun. This can happen just from going into the store and then back to my car, not just from going to the beach or something like that. It depends on the time of year and cloud coverage too though.
I also have strange patches of skin on my scalp that come and go(OK gross, I know. Don't usually tell people about that one). Malar rash has been noted esp. after sun exposure. I also have sore throats and low fevers that last anywhere from one hour to several weeks.
Oh, and of course arthritis. That is what got me to the rheumatologist in the first place. My foot and thumb were so swollen last summer that he didn't think it was presenting like lupus. I did test positive for RA too, but the level was not sky high. My x rays have so far shown no joint damage. I am due for another round this summer.
The thing that confused him most is that my sedimentation rate is only slightly elevated and considering the symptoms and visible swelling, he was surprised.
Keep us posted on what happens. I have read your other posts and I know exactly what you mean about feeling 74 after trying to do anything remotely strenuous. Taking Carson to the park will do it for me every time. We're too young to feel this way!