My urine test came back normal! Whooo! Thanks everyone for your good thoughts and prayers. (I can't believe I'm so excited about my pee.)
I have a "med check" appointment with my PCP and my eye exam this week. I start taking my new lupus med on Sunday. I've stocked up on my safest (for IBS) foods, teas, and Imodium, in case I feel nauseated or have other GI side effects. I'm also working with my work supervisor and someone in personnel about getting on long-term disability; I'm almost out of leave and I want to make sure I don't lose any pay or benefits if I continue to feel so bad or if I get worse.
Here's something strange: I thought I was dealing pretty well with this lupus diagnosis. To me, from what I've read and from what the rheumy said, it's not as serious as it used to be. I mean, it is (the fatigue, pain, and arthritis SUCK), but there are a lot more treatment options and ways to manage it than 20 years ago. I am hopeful that the medicine will work.
Anyway, when I went to pick up the Plaquenil and was talking to the pharmacist I started tearing up! I don't usually cry in public, so it really surprised me to feel so...emotional. I was really happy when I first got the diagnosis ("An answer! Finally!"), but as the days passed I felt stuck and anxious - as though by having lupus I was being forced into a relationship or commitment. Isn't that weird?
I don't remember what I was thinking when I was at the pharmacy, but getting the medication just made the diagnosis REAL.
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