Hi, I'm sorry you are going through this. I also have severe pain a lot. Diet only seems to help me a little. Some days I'm ok, just some bloating and gas and mild pain but I get into bad cycles also. I had a horrible pain cycle this past fall that lasted 8 weeks. I was miserable. I take Miralax for the C but the dr's can't figure out why the pain gets so bad. I have brown burn marks on my belly that never go away from sleeping with the heating almost every night.
When I get into a bad pain cycle, I can't stand even to wear clothes, just the slightest amount of pressure makes it worse. When I get bad like that, not much seems to help. I'll switch from my miralax to Zelnorm because thats supposed to help but it doesn't much. I also take Donnatol, an anti-spasm medication, again, it doesn't help a lot. I'll take Xanax for the anxiety, Vicodin for the pain and Phenegran for the nausea.
It seems though that it just needs to run its course sometimes because not much helps. The dr's have seen me at my worse. The have taken my blood pressure and pulse and seen how high they get from the pain. They've seen how I walk doubled over and get very short of breath. But there doesn't seem to be anything they can do. My dr is very sympathetic and gets frustrated also.
I'm sorry, I guess I don't have any real advice for you but you are not alone. Have you tried a low dose of anti-depressant? I take Zoloft right now but liked Lexapro the best. They seem to at least somewhat keep my mental state from getting too low. They are also shown to help with the IBS symptoms. Hugs.
-------------------- Taking it one day at a time.....
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Re: help me please...
