I have had many of the same problems you have had with my crohns. (It has many of the bathroom/stomach problems as IBS has.) It has been 10 years now. I know how scary and upseting it can be to be no where near a bathroom. I always feel better when I come with supplies. I ALWAYS bring a change of clothes with me and baby wipes in a plastic bag(to put everything in if it go soiled). (At one time in my life I was using adult undergarments because everything was so bad.) It is sad to think that something might happen, but if it does you can know that you have a clean change of cloths. You have taken CONTROL of the situation, not it of you.
My parent also didn't understand. Before I was diganosed with crohns I was very, very skinny form malabsortion of my food, the doctors told my parents that I was doing this to myself. I felt very alone. But I wasn't and your not either. I take lomitol a prescription anti-D. which helps, also symax duo tabs. They are an anti spasmatic for my bowels. There is also a symax you can dislove under your tongue for help with cramping right away. Maybe you should ask your G.I. about that.
There were times when I wanted to lay in bed and do nothing, and I did. Because of doing that I rested and started to feel better. Stress can be a terriable thing. Yoga is a wonderful way to strech and relax your body and mind. Or maybe something else that makes you happy. I enjoy bird watching, which I can do on the days I feel really bad(and laying in bed.) You are not alone. People understand. I have found that people understand more than I thought. Just yesterday I was at a resturant. As we got up to pay the bill my clip on my ielostomy came undone and the contents of my bag emptied all over my shorts, leg, shoes, and the carpet of the dining area. I ran off to the bathroom and took off my pants. I washed them under the sink. I took off my shoe and washed it. I cleaned up my leg and foot. I also cleaned up anything that fell onto the ground of the bathroom. I walked out of the bathroom and up to the waitress and told her what had happened and that I was truly sorry. (Not that any of that could have been helped.) She said that she didn't know what an ielostomy was and didn't understand. (An ielostomy is when you get part of your ielum-small intestine put through your stomach. Then your body empties its waste through there. You have to wear a bag on your stomach to catch the waste. You have no control when you go to the bathroom and it goes almost all the time.) I gave her a little more info. She looked very sorry and said it was ok. She put her arm around me. I left with my head held high. I got to the car and changed my clothes. I made it through ok. (I haven't always had an ielostomy. I had one for a year and a half in 1999-2000. It was taken down and I was hooked back up as everybody else is. Then in April of this year I had to have one put back in. I hope to have it removed soon.) Stay strong. You'll feel better soon.
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Crohns, lactose intolerant
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Re: I can't stand this.
