Hello shawneric,
I was wondering if there was a new medicine to treat Mast Cell disease, which I was unsucessfully treated for when I was referred to an allergist in the early '90's. I took sodium cromalyn for 2 years daily in the States, then for another 2 in France (the reason I switched to a French doctor was because my medicine in America was only available in a powdered capsule form, which I had to break and dissolve in boiling water 3x a day, while in France the doctors gave me glass ampoules of liquid, and their opinion of American doctors.).
Despite me not responding to this treatment and never displaying the symptoms of masto cytosis, the blotchy skin rash accompanying this disease, my allergists refused me a different diagnosis, so I discontinued treatment.
Three doctors later and a total of four colonoscopies with biopsies, sigmoidoscopies, upper GIs, lower GIs, barium swallows, barium enemas, MRIs and CAT scans, they gave me "normal" results: no swelling, no celiac, Crohns, Lyme, MS, Parkinsons, nothing but Pain-predominant IBS-D and Fibromyalgia+CFS. So I most likely never had Mast Cell disease.
What intrigues me is that medicines to suppress Mast cells from releasing hystamine are being considered for IBS patients. I have used benedryl, Allegra and Claratin to control hay fever and have found absolutely no effect on my stomach issues. As a D-er, I am accutely aware of reactions to new meds, and have over the years tried to limit my treatment to loperamide, belladonna, yoga and meditation, and to control the environmental and external stressors (a/c, arguing with mom  ).
If you are still reading my rambling post, I thank you. Do drugs target the gut histamines more than they used to, and are there new Mast Cell therapies good for IBS?
Best,
~nelly~
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