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About Lotronex
      06/01/05 09:31 AM
Sand

Reged: 12/13/04
Posts: 4490
Loc: West Orange, NJ (IBS-D)

Lotronex was pulled from the market temporarily. The outcry from IBS sufferers who had found relief from it prompted the FDA and GlaxoSmithKline (the makers of Lotronex) to make it available again under controlled conditions.

Here are a couple of Website where you can read about Lotronex:
Lotronex Home Page
FDA Announcement

If I understand correctly, the 11 women who died, died of ischemis colitis. The second Website explains what that is.

I spoke with my GI guy about Lotronex. He is in the prescribing program and feels it is a very valuable drug for intractable cases of IBS-D. He claims that it is safe if patients who are on it stop taking it and call their physicians at the first sign of constipation. My GI is a good guy, bright and knowledgeable, but I think he's too quick to prescribe and especially too quick to prescribe drugs without a long track record.

My own feeling about Lotronex is this: I'd try everything other reasonable solution first, but if my IBS had continued to be as bad as it was before I started Heather's diet, I would have definitely been willing to risk Lotronex.

My advice is that if you are taking Zelnorm and it is important to you that it stay on the market, write or call the FDA to say so. It might be even better to contact the makers of Zelnorm, express your concerns about it being pulled, and ask them what you can do to influence the process.

--------------------
[Research tells us fourteen out of any ten individuals likes chocolate. - Sandra Boynton]

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Entire thread
* Talked to my GI doc, claims he knows the cause of IBS
jules
05/31/05 07:17 AM
* For Jules..When I was pregnant!
mickz
06/02/05 04:24 AM
* Re: For Jules..When I was pregnant!
jules
06/02/05 06:24 AM
* Re: For Jules..When I was pregnant!
mickz
06/02/05 10:16 AM
* Re: For Jules..When I was pregnant!
jules
06/02/05 05:28 AM
* Talked to my GI doc, Jules - Fiber, Fiber, Fiber
HeidnOut
06/01/05 05:12 PM
* Jules, we want to see a photo of you pregnant! ---nt--
BL
06/01/05 04:46 PM
* Fennel tea is absolutely safe during pregnancy - it's also given to newborn infants
HeatherAdministrator
05/31/05 12:19 PM
* heather/ additional re: zelnorm
pulse
05/31/05 12:43 PM
* Re: heather/ additional re: zelnorm
bellshel32
06/01/05 01:15 PM
* Re: heather/ additional re: zelnorm
pulse
06/01/05 03:26 PM
* Re: heather/ additional re: zelnorm
bellshel32
06/02/05 11:12 AM
* Re: heather/ additional re: zelnorm
john g
06/01/05 02:14 AM
* Re: heather/ additional re: zelnorm
Kemi
05/31/05 06:15 PM
* Re: heather/ additional re: zelnorm
jenny_k
06/01/05 05:20 PM
* This is terrifying...
HeatherAdministrator
05/31/05 05:51 PM
* Re: This is terrifying...
jules
05/31/05 05:54 PM
* Serotonin is definitely implicated in IBS...
HeatherAdministrator
05/31/05 06:00 PM
* Re: Serotonin is definitely implicated in IBS...
jules
06/01/05 05:29 AM
* Jules...I wanted to send you a private message...
Shelli73
06/01/05 10:13 PM
* Jules
BL
06/01/05 02:08 PM
* Re: Serotonin is definitely implicated in IBS...
john g
06/01/05 02:10 AM
* About Lotronex
Sand
06/01/05 09:31 AM
* How much is Lotronex?
Nelly
06/02/05 09:15 AM
* Re: How much is Lotronex?
Sand
06/02/05 04:57 PM
* It is exorbitantly expensive, as is Zelnorm. If you have no insurance coverage...
HeatherAdministrator
06/02/05 06:03 PM
* Re: It is exorbitantly expensive, as is Zelnorm. If you have no insurance coverage...
pulse
06/02/05 06:50 PM
* Thanks everybody for the info--
Nelly
06/03/05 10:59 AM
* Re: Thanks everybody for the info--
Sand
06/03/05 01:20 PM
* It had that effect on my mother!!!!
BL
06/01/05 02:12 PM
* I'm so sorry to hear that. How fortunate she was able to make a full recovery. -nt-
Sand
06/01/05 04:03 PM
* Re: Serotonin is definitely implicated in IBS...
bamagirl
06/01/05 07:27 AM
* Re: Serotonin is definitely implicated in IBS...
Kemi
06/01/05 06:31 AM
* Butting in---
bellshel32
06/01/05 01:18 PM
* Took Zelnorm last night....
SCgirl
06/01/05 10:20 AM
* I used to get that on a weekly basis BEFORE the Zelnorm!
_Willow
06/01/05 06:21 PM
* Doctors put people on drugs that harm all the time!
Cyndy
06/01/05 06:49 AM
* Re: Doctors put people on drugs that harm all the time!
Kemi
06/01/05 12:56 PM
* Re: Doctors put people on drugs that harm all the time!
Cyndy
06/01/05 01:05 PM
* Re: Doctors put people on drugs that harm all the time!
Kemi
06/02/05 06:01 AM
* There's full info on Zelnorm in the IBS Glossary...
HeatherAdministrator
06/02/05 11:16 AM
* Oh my!
Kristin940
06/01/05 01:01 PM
* Re: Talked to my GI doc, claims he knows the cause of IBS
bamagirl
05/31/05 08:29 AM
* Re: Talked to my GI doc, claims he knows the cause of IBS
jules
05/31/05 12:14 PM
* Hi, Jules
BL
05/31/05 06:00 PM
* Re: Talked to my GI doc, claims he knows the cause of IBS
bamagirl
05/31/05 12:51 PM
* ginger tea?
Lyndsey
05/31/05 12:26 PM
* Re: ginger tea?
jules
05/31/05 12:51 PM
* Re: ginger tea?
jules
05/31/05 01:09 PM
* Re: Talked to my GI doc, claims he knows the cause of IBS
Yoda (formerly Hans)
05/31/05 08:24 AM

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