Re: One more try
04/10/05 04:34 PM
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Ganny
Reged: 05/02/04
Posts: 27
Loc: Oregon, USA
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To all who responded: I found out why I was so lost. I was marking "favorites" but had no idea how to find them. Just now (after many many tries) found "My Home" and edited some stuff and saw my favorites there with all the links! OY! So I want to thank you, one and all for responding.
Someone asked about food diary and if I'm following Heather's helps. I kept diaries for years on a daily basis, and I still do off and on. I think I'll just do foods and not put in everything else (I was tracking emotions, happenings of the day, everything). I don't even like to read them for the most part. I'll do it more simply with foods and symptoms (I know it takes about three days for foods to "show" themselves unless we are in "rapid transit" times!).
I have to keep trying my own ideas coupled with Heather's plus an old doctor in Idaho who's worked on this for maybe 40 years. He's amazing! I can't figure out how to get around the egg whites. They seem to be just about everywhere. I have egg substitute, but it's NOT like real eggs. A little in quick bread or muffins here and there isn't bad, but if I keep repeating, I notice it acts like when I use any "cow's milk." The casein really gets me.
I change by the day, the week, the month. What works for a while falls apart another such as the mess I got into a week ago last Wednesday. I may have had tainted salad from deli (I know, I should not do that, but I love the stuff)! I was "hit" about 12 hours after eating the salad (meat, bit of cheese, creamy dressings, creamed salmon in pasta, fake crabmeat...not HUGE, but enough to get me). The store doesn't hear me on this. This caused a trip to ER about midnight Wed. night. IVs to rehydrate me, two antibiotics IV that made me feel more sick, barium CT scan. Showed a mild inflammation of colon. I felt like flu until I woke up yesterday (Saturday). I tried a little bit of well-cooked white rice. Two-three hours later I got "hit" with diarrhea. Not the end of the world, but if I were to try that several times a day or maybe even two days in a row, I would more than likely wipe out again. I've lost about 15 pounds I believe (no love lost there!).
My question when I once more came April 3 was for ideas to get through the acute stages of whatever hit me that morning. I felt desperate thus the anxiety in my notes. I still don't know how to pull out of a nasty "D" attack. In the past it would run weeks, even months with me on clear liquids to survive. I would lose far more fluids if I ate, and I've proven that! I tried the fibers (the Acacia and some Benefiber) with this to no avail. Seems to end up with diarrhea.
I'm wondering if I should try at least once per day to eat a bit of rice and Acacia and/or Benefiber. Any ideas. I don't want to be doing this through the summer as I did before my surgeries 2002 and 2003! I thought this was behind me! I worry for the future then realize that's not the answer. What will be will be. I just don't want to lose more colon. I almost bled out completely Dec. 2003, and that still haunts me how close I came to not being!
Thanks for your great helps! I usually stumble around on anything and eventually find the answers. I just was very anxious for helps on the first few and worst days of this. Now it's how to get past the weirded out gut. Seems the gut brain is not communicating right message to big brain. I can go along in a spell like this for a long time and suddenly I just KNOW I can eat normally, and I do. It's all over. It's the strangest thing. How much of this is within mind control I wonder, and how does that happen? To be not okay one hour and suddenly "KNOW" I can now eat. Beats me!
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