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We spent our Valentine's Day in the ER!
      #150262 - 02/15/05 08:59 AM
ecmmbm

Reged: 02/23/03
Posts: 1622
Loc: North Carolina

Actually, let's back up. We went to talk to my new doctor about this surgery. He looked at what I've got going on and admitted that he would not work on it wihtout a vascular surgeon also on board, and that he thinks we should get me in to see one and do the "dye in the veins" thing before surgery so we know exactly what we're dealing with. Fair enough. Just prolongs things but hey, been a couple years, what's a couple more weeks at this point.... What was unnerving was how he kept talking about the vascular aspect of things and to have so large a vein inside puddling like that is a potentially hazardous situation especially during surgery. But it has to be fixed, it can't stay this way! (if anyone wants to understand better what I'm talking about here is a link to a powerpoint presentation, I think page 7 shows the best image: http://www.rsna.org/media/briefings/2003/ppt/Roberts_Ovarian_reflux.ppt

Okay, so we're a little on edge realizing that this won't be the most simple surgery ever done but we're okay, enjoying the kids, I'm kicked back on the couch with my hips elevated which is the best position I can tolerate right now... when out of nowhere I get terrible chest pains. In the left part of my chest, radiating up into my neck and left shoulder, I mean terrible sharp pain that gets worse when I breathe in. Eric flat flips out. I ask him to give me 10 minutes to relax and try to make it stop, that it's probably just a muscles spasm or something. It doesn't stop at all and then I honestly start to feel a little worried that something from this vein has formed a blockage or something???? We get brother-in-law over to watch the kids and he rushes me to ER. It finally stopped after over an hour. After many tests... my heart is fine but they also checked for a blood clot. That test came back abnormal but the ct scan showed no clot anywhere. So they're thinking the test was a fluke. I'm thinking something about this vein issue affected the test, but didn't have anything to do with my chest pain. I think I had some kind of anxiety attack because even though I felt relaxed and fine at the moment this pain has been building and this uncertainty about what is going to happen... I hate to admit I'd have somethign as "silly" (in my mind) as a panic attack but that seems to be what it was. Geez louise does it feel REAL and hurt and will scare the life out of ya!! When it was over I felt extremely nauseated and exhausted.

And a note on pain tolerance! I do NOT at ALL believe that we IBS'ers necessarily have low pain tolerance. I think we have HIGH pain RECEPTORS in our "guts" so we feel more pain! Does that make sense? Because... they had to draw blood from an ARTERY to do one of these tests - not a vein like when you give blood or they draw blood or give you an IV, an ARTERY - the guy told dh to hold my other hand tight because it was really going to hurt and take a while to do. He drew it from the really sensitive place in my wrist. Well, I took my deep breaths and focused like I've learned to do when all my other things HURT and didn't flinch one bit. When it was all said and done he said, "Da%#, you did better than most guys! You have one tough pain tolerance!" It actually made me feel REALLY GOOD because we can start to feel like babies or hypochondriacs after a while, as I'm sure you all well know! So keep that in mind - you're tougher because you're FEELING more, I totally believe that.

So, back to the story, we laid in the ER and wished each other Happy Valentine's Day! Can you believe it? oh the drama... make it stop!! I can't wait to get my normal easy-going picture of health life back!!!!!!!!!! Today all feels about the same but at least I know my heart is healthy, if nothing else is!

--------------------
Take care,
Michelle
...the greatest of these is LOVE. (I Cor 13)


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I agree 100%!! new
      #150271 - 02/15/05 09:18 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

Quote:

And a note on pain tolerance! I do NOT at ALL believe that we IBS'ers necessarily have low pain tolerance. I think we have HIGH pain RECEPTORS in our "guts" so we feel more pain! Does that make sense?




It absolutely makes sense to me. I am constantly in pain and feel acute pain even from a simple injury a day after it has happened!! I completely believe this is tied to the continual use of my pain receptors from my IBS!

I see paople washing dishes and banging their hand on the sink and think I'd be clutching my arm to my chest with a look of a silent scream frozen on my face right now! Or when people lift things into a truck on moving day, and I'm like I could do that ONCE, then pay for it the rest of the week!

I've spent so many birthdays and xmases and thxgvgs in the hospital I can completely understand why you could have an emergency on Valentine's Day. It seems random, but I'll bet it's not. All that stress. Take care of yourself!!

All my best!

~nelly~

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Re: We spent our Valentine's Day in the ER! new
      #150272 - 02/15/05 09:20 AM
Yoda (formerly Hans)

Reged: 01/22/03
Posts: 3682
Loc: Canada

Oh, sweetie. I feel horrible that you had such a terrible time - especially right before your surgery!!!!!
I'll keep you on my prayer list. Hugs, Han.

--------------------
Formerly HanSolo. IBS, OCD, Bipolar, PTSD times 3.

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Re: Oh Michelle, new
      #150280 - 02/15/05 09:40 AM
michele

Reged: 06/02/03
Posts: 6886
Loc: southeastern michigan

I'm so sorry! I just hope all this is over for you soon! Hang in there!

--------------------
Taking it one day at a time.....

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Re: We spent our Valentine's Day in the ER! new
      #150283 - 02/15/05 09:46 AM
Lana_Marie

Reged: 01/31/03
Posts: 1968
Loc: Saskatchewan. Canada

I am so sorry you are going through this! That's terrible...I don't blame Eric for flipping out! It's only cuz he loves you.

I will keep you in my thoughts and my fingers are crossed that everything will turn around for you real soon!

--------------------
Lana_Marie
Proud Mommy to Bentley Taylor
Born May 12, 2004 9lbs, 3oz



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Keeping you in my thoughts! Hope you're feeling better. -nt- new
      #150289 - 02/15/05 09:52 AM
Jennifer Rose

Reged: 04/02/03
Posts: 3566
Loc: Fremont, CA



--------------------
- Jennifer

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{{{{HUGS}}}} new
      #150293 - 02/15/05 09:58 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

What a day you guys had! Lets get this all over soon and have you back healthy, okay?

And I totally get you on the pain thing...we're so used to being in pain that we have amazing coping strategies! Yay for us! Plus, being a woman certainly helps! I once broke my big toe and all the guys were saying "oh you're fine...if it was broken you wouldn't be able to walk it would hurt so much!"...and that toe was SO broken!

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Nelly...sounds like Fibro! new
      #150296 - 02/15/05 10:00 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

That was one of my first indicators that SOMETHING was definitely wrong...banging my leg on my desk and still being in agony an hour later! Still a big problem. Darn all those excess pain chemicals!!!

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My mother's doc diagnosed me with Fibro! new
      #150299 - 02/15/05 10:07 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I NEVER knew about fibro until I joined this site! I was so mad reading posts about it because all the symptoms I've been complaining about since I was 10 and nobody EVER mentioned Fibro to me!! But now I know I have it, I've been trying to read up about everything. I feel so stupid because I could have been being treated so long ago if any doctor had ever looked at all those stupid boxes I checked off on all those forms I filled out over the course of a lifetime going to doctors!

But I'm on the right track now, I hope! I'm taking amitriptyline to sleep and feeling a lot better because of it. Plus I'm not working right now so I have the chance to really treat my body with care. I'm thinking about joining a support group but I haven't found anywhere I fit in yet.

Pain chemicals suck, I agree!!!

~nelly~

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Nelly new
      #150306 - 02/15/05 10:18 AM
Linz

Reged: 09/01/03
Posts: 8242
Loc: England

At least you know what it is now! It took me 10 years of doctors either making stuff up or admitting they didn't know what was wrong with me to get a diagnosis! And my case history is classic Fibro.

How are you doing with the amitrityline? I'm on that too...it's the only sleep aid my doc will give me...and it doesn't seem to help me much...but that means I've been a bit lax about taking it.

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Re: Nelly new
      #150359 - 02/15/05 11:32 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

I've been taking it for about a week and a half, around an hour before bedtime. I know I'm sleeping better, but I'm turning over in bed less and wake up a little stiff with the bed looking like I just climbbed into it. I haven't tried waking up with an alarm clock, cause I think I'd be groggy if I tried to wake up before the pill wore off. But I'm def feeling more rested and I'm feeling like i have less of an urge to take naps during the day.

It hasn't helped my restless leg syndrome any, though, and I still kick before I go to sleep. Do you have restless leg too?

~nelly~

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Re: We spent our Valentine's Day in the ER! new
      #150411 - 02/15/05 12:52 PM
BL

Reged: 06/01/03
Posts: 3522


Ahhh, Michelle, I wish I'd known you were in the hospital. I could've come to visit you. Maybe they would've given us adjoining rooms or beds. Sorry, don't mean to be kidding about a serious subject, but I feel like I have to or I'm gonna lose my mind!

About the panic attacks, I have had them before and they are horrible. You do feel like you are having a heart attack! And as much as you tell yourself to snap out of it, you can't. I don't know why they happen, but when they do, it is an awful feeling. I remember feeling panicky like someone had a pillow over my face and was suffocating me.

I'm glad you went to the doctor and had yourself thoroughly checked. I hope they will schedule your surgery soon---and that you can get some relief.

And I read your post to me about my mother. I know I need to practice "tough love" with her, but it's so hard. I know that I will get all emotional and probably cry and raise my voice at her---and then I will just upset her. I have held this in for quite awhile, and I feel like a volcano about to
explode! I will have to practice saying it very nicely and do it when I'm nice and calm (which is rare these days!)



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*HUG* at least your ok, and will be better soon.. new
      #150438 - 02/15/05 02:18 PM
khyricat

Reged: 08/05/04
Posts: 3612
Loc: Michigan

and your oh so right on the pain tolerance thing.. DH still can't believe some of the stuff I've dealt with and the chiropractor said he couldn't believe I was just then deciding the back pain was a bother... he'd had people as bad as my spine was unable to walk due to the pain!

--------------------
Dietetics Student (anticipating RD exam in Aug 2010)
IBS - A
Dairy Allergic
Fructose and MSG intollerant


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Re: We spent our Valentine's Day in the ER! new
      #150441 - 02/15/05 02:22 PM
heather7476

Reged: 08/09/04
Posts: 2996
Loc: South East Michigan

AWWE Honey! BIG HUGS!!!!
I hope your feeling better soon!!
I will keep you in my prayers!!!
BIG HUGS!!!!!

--------------------
Heather7476


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Re: Nelly new
      #150671 - 02/16/05 07:07 AM
Tissy

Reged: 07/15/04
Posts: 773
Loc: Baltimore, MD

Hey Nelly,

Welcome to the Fibro club! It is grand isn't it? Sorry you found out you have Fibro but at least you have a name to place with all the symptoms. And if you find a support group let me know b/c I live in the Baltimore area.

It's funny I was just discussing w/ hubby last night how I bang my arm or leg on something and I swear I am going to have the biggest bruise ever b/c it hurts so bad and then nothing. But at the time the pain is so strong I do the silent scream thing too. LOL!

Glad to hear that you are feeling better since you got sleep meds.

Christie

--------------------
Christie
~Hoping and Praying for Sleep!~

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Nelly new
      #150677 - 02/16/05 07:14 AM
BL

Reged: 06/01/03
Posts: 3522


I'm sorry you have fibro, but I'm glad you finally have a diagnosis and are on your way to recovery! Glad to know you are sleeping better ..... ahhh, sleep. .... that's something I have to have!

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Fibro club! new
      #150680 - 02/16/05 07:18 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

Hey Christie! I didn't realize you had fibro too! Guess I have to start paying more attention when I see a fibro post now! Laura Sue was the first person to enlighten me about fibro, and her helpful emails really opened my eyes. Maybe you and I can start a fibro club in the area if we can drum up some more people!

I've been trying to play with the dog and it's left me battered and sore! Poor thing thinks I'm there for his amusement now, and he's always fetching a rope or ball for me to play with. UGH!

~nelly~

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Re: We spent our Valentine's Day in the ER! new
      #150683 - 02/16/05 07:23 AM
Angela E.

Reged: 10/14/04
Posts: 2518
Loc: Michigan

So sorry you had to spend v-day like that Michelle! Hope that things are going better for you! Hang in there!

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Re: We spent our Valentine's Day in the ER! new
      #150684 - 02/16/05 07:27 AM
daliatree

Reged: 07/10/04
Posts: 1176
Loc: Manhattan, New York

I am sorry it has taken me a while to reply - let me just say what a positive person you are - your really take things in yours stride as much as you can and you are so brave! what an inpiration. I reallllly hope they sort this out quickly with minimal pain and discomfort and you can get back to your life with those beautiful children of yours...

--------------------
Feel the fear and do it anyway!


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wow nelly! new
      #150685 - 02/16/05 07:30 AM
daliatree

Reged: 07/10/04
Posts: 1176
Loc: Manhattan, New York

hey nelly lady! we haven't chatted for ages! my fault methinks. wow...you have fibro. I hope you find a way to make everything better - you have suffered for so long and its NOT fair. take good care of yourself!!! :-)

--------------------
Feel the fear and do it anyway!


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Re: wow nelly! new
      #150691 - 02/16/05 07:43 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

Aw, Dalia, thanks for the support. You're the sweetest! It's funny, I'm not bowled over by the diagnosis, just mad nobody ever mentioned it to me before! Doesn't change what I have, just the fact I thought I was crazy all these years with all this random bad stuff going on in my body!!

~nelly~

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Re: Nelly new
      #150693 - 02/16/05 07:44 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

Thanks, BL!

Sleep! That elusive seductress!! We all have to get some of that!!

~nelly~

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