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Diagnosed: Fructose Malabsorption; some questions, including weight loss issues
      #364959 - 06/01/11 10:07 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


After having numerous tests done, I finally had one come back positive and that was for fructose malabsorption. Based on the results of my food log, this was one of the tests I really suspected would come back positive before taking it. I received the diagnosis today, and have been reading up on a ton of information online. The problem is that most of it is conflicting and I was wondering if some people with experience could answer a few questions I have.

First, is weight loss a possible problem with FM? Based on this site, it is listed as a symptom: Fructose Malabsorption . My symptoms almost match up exactly with the list given:

-frequent C, rare, but seemingly predictable D; no urgency
-bloating, gas
-gurgling
-gas pains
-abdominal pain; occasionally severe, but erratic
-fatigue
-headache
-brain fog, inability to concentrate at times
-weight loss, at times
-yawning and hickups, very predictable patterns

I have pretty much gone through all the main testing. I have not been tested for SIBO or had a colonoscopy, though. I was wondering if other FM sufferers had any of the above symptoms. Most websites tend to focus on the bloating/gas and diarrhea/constipation issues.

The weight loss has been an issue for me and I'm wondering if something like FM may be a problem. In the past 15 months, I went from 160lbs to an all-time high of 190lbs, gaining about 1.5lbs/week with a lot of effort on eating. Then, I dropped to 150lbs over the course of 4-5 months, with most of the weight loss occurring on vacations over that time. On vacation, I would eat any food, whereas at home I prepare all of my own meals.

Upon dropping to 150lbs, an adult lifetime low (I am 6'2, 29), I worked on putting weight on and gained 1 lb/week to get back to 175lbs. During this time, I followed a strict diet and was at home, preparing my meals. I just completed a 3 week trip to Italy, over which I lost 15 pounds to return to 160lbs, where I have stayed for a couple weeks. Given my recent 150lb low, I was working extremely hard at tracking calories and averaged around 2,900 calories/day. The drop in weight seemed abnormal, as it often has while traveling. I also tracked calories burned walking/sightseeing, and don't feel I should have lost as much weight as I had.

I tracked calories and food for this entire time frame. Anyone care to comment on this weight loss? Could fructose malabsorption be a culprit? It seems as if I eat food I know agrees with me and follows the IBS/fructose diet, I can gain weight. Immediately, and always while traveling, I seem to be losing weight drastically. Has anyone experienced anything similar?

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----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

Edited by IBSHelpWanted (06/01/11 10:09 PM)

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Re: Diagnosed: Fructose Malabsorption; some questions, including weight loss issues new
      #364960 - 06/02/11 12:04 AM
boron

Reged: 05/11/11
Posts: 47


Losing weight in fructose malabsorption (FM) may be caused by avoiding eating and/or chronic diarrhea with the resulting loss of nutrients. You don't mention diarrhea, though.

Other less commonly mentioned symptoms in FM, such as brain fog, fatigue or headache, might be caused by dehydration or nutrient (iron, zinc?) deficiences caused by diarrhea, or SIBO.

Disorders, such as lactose intolerance (more likely causing diarrhea than constipation) or SIBO, could be present either as a cause or result of FM. FM can be a complication of a celiac disease; in this case you would probably have problem with wheat and other gluten-containing foods.

Intestinal parasites may cause weight loss and nutrient deficiences with various symptoms, including yours. I mentioned this since you mentioned traveling.

You may want to discuss with your gastroenterologist about SIBO and intestinal parasites.

--------------------
I don't have IBS.

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Re: Diagnosed: Fructose Malabsorption; some questions, including weight loss issues new
      #364963 - 06/02/11 05:23 AM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

Rapid weight loss is unlikely to be related to FM unless you removed a lot of foods containing lots of sugars and didn't replace those calories with other foods.

Did the weight loss begin before or after you were diagnosed with fructose malabsorption? However, since your weight loss seems to only occur when you are travelling but you gain weight when you are at home eating safely it doesn't sound like FM is the culprit. Since you track calories can you tell us how your caloric intake changes when you travel? You say don't think you should have lost as much weight as you have. Does this mean you were expecting to loss some weight when travelling? Have you talk to your GP about this weight loss?



--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Re: Diagnosed: Fructose Malabsorption; some questions, including weight loss issues new
      #364967 - 06/02/11 08:09 AM
Susie1985

Reged: 05/04/11
Posts: 211


Can it not be that when you travel you are just generally more active and you use up more calories?

--------------------
now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)

before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010


FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml


[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]

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Re: Diagnosed: Fructose Malabsorption; some questions, including weight loss issues new
      #365426 - 07/05/11 02:11 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

Rapid weight loss is unlikely to be related to FM unless you removed a lot of foods containing lots of sugars and didn't replace those calories with other foods.

Did the weight loss begin before or after you were diagnosed with fructose malabsorption? However, since your weight loss seems to only occur when you are travelling but you gain weight when you are at home eating safely it doesn't sound like FM is the culprit. Since you track calories can you tell us how your caloric intake changes when you travel? You say don't think you should have lost as much weight as you have. Does this mean you were expecting to loss some weight when travelling? Have you talk to your GP about this weight loss?






Sorry for the late reply guys, but I was actually traveling for almost the entire last month. In reply to the question on weight loss, I have always had to work to put weight on and have always been skinny. In the last two years, this issue has become worse. Even with making concentrated efforts to at least maintain my weight, I ended up reaching a low weight of 150, which I haven't seen in over 10 years (I am a 30 year old, 6'2 male).

I track my calories daily, and have kept very detailed records. After reaching an all time low of 150 pounds, I was able to get myself back up to 170 with a lot of hard work and very focused eating on foods I felt were good for IBS/fructose malabsorption. Most of the calories came from items such as chicken, rice, white tortillas, french bread, potatoes, fish/seafood, chocolate soy milk, orange juice, baked ruffles, and guacamole/hummus. During this time, I also felt much better. Not anywhere near perfect, but much improved over the past two years, and I believe the dietary changes played a role.

Based on my calculations, and my experience over the years, I believe I need around 2,400 calories or so daily to maintain my weight. My Basal Metabolic Rate is 1900, and I throw a bit of a buffer in there for basic walking, etc. I maintain a desk job, and outside of exercising, my daily work lifestyle is not very active.

Since I just took a vacation, I wanted to make another post with how I did weight-wise and see if anyone cared to comment on anything. This post is already getting a little long, so I'll create another one with how I did on my most recent trip.

Thanks a lot



--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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Re: Diagnosed: Fructose Malabsorption; some questions, including weight loss issues new
      #365427 - 07/05/11 03:14 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


For my most recent vacation, I did everything I could to try and keep weight on. The trip was a work trip, and was to a place I frequent very often. Outside of walking from the hotel room down to a desk job or the pool, I did no exercise or walking. I was less active than I am at home even. For any time that I did happen to walk for more than a half hour total over the course of a day, I considered this exercise and tracked the calories and deducted them from the numbers below.

Here's a summary of how I did each week. I weighed myself at night each day. I have every food item and every ounce of exercise tracked. I really want to put this weight back on! I deducted any exercise/walking calories burned from the calorie number. I actually ate MORE calories, but simply deduct the exercise to get a net calorie number I always use:

WEEK___Weight, begin____Calories (less exercise)___Water (avg)___Weight, end

1____160____2,917____71 oz____154
2____154____2,847____69 oz____157
3____157____3,028____53 oz____158
4____158____2,985____64 oz____159

Overall, I pretty much ended up maintaining my weight on this trip. I lost a lot of weight at the beginning of the trip, as the scale dropped down consistently for the first 9 days or so. When we were all said and done, though, my weight stayed the same.

The reason this was a little disappointing to me is that, for the 30 previous weeks I had tracked where I did not vacation at all, and stuck with the foods listed in my other post (chicken, rice, potatoes, fish, etc), I averaged eating only 2,675 NET calories (around 3,400 calories/day with a ton of exercise) and was able to gain 1.4 pounds per week. Here, I ate around 2,900 net calories and lost a pound over the course of the month, while doing absolutely no exercise. This period occured after I managed to lose 20 pounds while eating the same number of calories, but from almost 100% food that I realized was making my symptoms much worse (before I found this board and had any diagnosis).

With the calories I ate, I expected to gain around 5-7 pounds over the course of the month based on my Basal Metabolic rate of around 1950. I am a bit of a hard gainer, but based on what I have seen over the past 30 weeks, I have gained 1.3 pounds per week with only eating 2,650 NET calories. The only times I have not gained were while I was vacationing, or the previously mentioned initial 20 lb loss.

The type of food is always the biggest change that happens while vacationing, and I thought it might have something to do with the weight loss/problems gaining weight.

I often times can feel a strong pulse in my stomach area. This pulse is normal, but has increased greatly in intensity in the past 2 years. When the intensity of the pulse in my stomach picks up, I can also feel it in my ear/head when I lay down on my side. It gets bad enough that I have to shift positions to fall asleep. Based on all of the tracking I have done on my 'symptoms' and how I feel, it appears that this pulse is not nearly as bad when I continually eat the good food I described earlier and have found out about on this message board. Is it possible, that the additional pulsing sensation is normal with IBS? It mimics my heart beat. When this happens, is it possible I could burn more calories than normal?

Also, I believe I have IBS-C and was diagnosed with fructose malabsorption. I very rarely have what I would consider D. However, I have started paying attention, and have noticed that foods known to be a problem with FM cause much softer stools than normal (my stools also float about 3/4 of the time if that matters). I wouldn't think it would be to the point of being considered 'D', but there is definitely a change and it is predictable.

All I have been able to determine, is that I seem to be able to gain weight while eating the safe foods for both FM and IBS, and eating around 2,700 calories/day, as well as more for any exercise at all that I do. Whenever I seem to stray from this, which is often times on vacation, I either lose weight quickly (15 lbs over 3 weeks), or stop gaining weight when I believe I should have based on the past year's worth of info. In summary, in the past 12 months, I have went from 178 lbs, to 152, back to 170, down to 155, and finally up to 160. I ate a fairly consistent 2,700 net calories weekly. The weight loss all occurred on vacation, or the initial 20-25 lbs I lost while at home eating a normal diet I was on before finding this board.

Is this normal, and have other people had any weight loss/gaining problems like this?

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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Re: Diagnosed: Fructose Malabsorption; some questions, including weight loss issues new
      #365428 - 07/05/11 03:23 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

Losing weight in fructose malabsorption (FM) may be caused by avoiding eating and/or chronic diarrhea with the resulting loss of nutrients. You don't mention diarrhea, though.

Other less commonly mentioned symptoms in FM, such as brain fog, fatigue or headache, might be caused by dehydration or nutrient (iron, zinc?) deficiences caused by diarrhea, or SIBO.

Disorders, such as lactose intolerance (more likely causing diarrhea than constipation) or SIBO, could be present either as a cause or result of FM. FM can be a complication of a celiac disease; in this case you would probably have problem with wheat and other gluten-containing foods.

Intestinal parasites may cause weight loss and nutrient deficiences with various symptoms, including yours. I mentioned this since you mentioned traveling.

You may want to discuss with your gastroenterologist about SIBO and intestinal parasites.




In the past year, I have had D less than 10 times. This is more often than normal for me, but not that often. I have frequent, hard, and small BM's daily and believe I am IBS-C with FM. I do notice a change in the softness of the BMs and have recently noticed that they seem to become softer after eating foods that are a problem for FM. I'm not sure if starting off in more of a constipated state could affect the intensity of the D. If someone started off with a more normal BM, maybe what I have, just slightly soft stools and not D at all I believe, would be very noticeable D for them. Maybe the IBS-C and FM work against each other in a way?

As for not mentioning D, this was a HUGE ommission on my part. During the three week trip originally mentioned in this thread, I had the worst D of my entire life. It lasted for about 3 days, and there was almost no noticeable form to any BM's. I did not really have any urgency, though, and rarely do. There was probably about 2-3 BM's daily, with no form at all, for about 3 days. It gradually returned to normal after that time. My diet was horrible for either IBS or FM during the entire duration of the trip. The D happened within the first half of the trip, and the food I ate only became worse afterwards with no returning D (but some softer stools).

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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Re: Diagnosed: Fructose Malabsorption; some questions, including weight loss issues new
      #365429 - 07/05/11 03:43 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

Can it not be that when you travel you are just generally more active and you use up more calories?




Hi Susie, I tend to be active while traveling and use up more calories. I always track my calories, though, and when I'm referring to my calorie consumption, I always make a note to talk about my net calories. I take and deduct any calories burned from exercise from my daily calorie intake. This way, I completely remove exercise from the equation and we can compare apples to apples, then.

After exercise (walking) on the original trip posted about in this board, I still averaged around 2,200 calories per day (total calories eaten were around 3,200/daily). This was less than normal by a lot, but should note have caused weight loss of anywhere near 5 lbs/week (15 total) I don't believe. In fact, if I were to go out at home, eat 3,200 calories per day, and try to walk off 5 pounds per week while only weighing 160 lbs, I think it would be extremely difficult to lose 15 pounds over the course of 3 weeks.

Before that trip, I was running about 20 miles/week, lifting 3 times weekly, and swimming/doing other exercise a couple times a week. I stopped all of that and ate the same number of calories on the trip that I had been eating, and gaining 1.3 lbs/week on even with all that exercise. I replaced all of that exercise with brisk to moderate walking typically done while sight seeing and went from gaining 1.3 pounds per week to losing 5. It just seems odd to me. The only change was the fact that I was vacationing and eating horrible food for IBS/FM while on the trip (I had felt great leading up to it, and actually felt decent on the trip as well).

My average diet consisted of:
Whole, meat or margherita pizza
Gelato/Ice cream/desserts
American style breakfast
Pasta, or gnocci
Salads w/ EVOO and Balsamic
Huge McDonalds meals
Candy/candy bars, etc

I made the focus of the trip to keep the weight on before leaving, and decided the way to do it was to eat high calorie foods, frequently and not care how I felt. I consistely felt worse on the trip, but overall, I felt ok and still much better than I had been 9 months ago. I could tell the food affected me, but for just a 3 week period with a lot of walking being done, it was manageable.

I did have horrible D for a few days, as mentioned in another post. However, I tend to 'feel' better on days that I have D (rare) than on days I seem to be constipated.

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----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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for susie 1985 new
      #365432 - 07/06/11 11:52 AM
skh

Reged: 08/05/09
Posts: 151


can u tell me what a normal daily food intake is for you? i fall into the same category as you for ibs/fm and need help gaining weight...i just need some help!!..what is something i could eat often with no issues that will put some weight on me besides bread or tortillas..these are getting old...and i know eating a loaf of french bread every week cannot be healthy anyway...thanks..

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Re: for susie 1985 new
      #365441 - 07/07/11 02:24 PM
Susie1985

Reged: 05/04/11
Posts: 211


Well ,general IBS rules for me demand
-no alcohol/caffeine
-fat content of meals restricted to around 20-25 per cent of calories per meal
-IF (insoluble fibre) limited, no whole grains except for oats and quinoa and IF content of foods balanced out with SF (soluble fibre) (http://huhs.harvard.edu/assets/File/OurServices/Service_Nutrition_Fiber.pdf is v helpful)

plus we have
-the FODMAP approach simultaneously
but if you look at the FODMAP chart there are separate columns (see Syl's signature for that chart), you may be fine with some columns. No lactose or fructose for me, fructans are v restricted cos I get too much bloating from them, polyols and galactans are OK for me. (for galactans you can also try Beano which helps with the bloating). So this is me, you may be different, you will have to experiment.

I eat a really really wide variety of foods and I eat extremely healthily, secret is in their favourable combination!

carbs:
non-wheat: white rice, puffed white rice cakes, potatoes, pearl barley, oatmeal, dried cereal: rice krispies (no whole grains in there!), quinoa (careful, has more IF than SF), maple syrup

wheat-based: this cereal sometimes: http://www.mysupermarket.co.uk/asda-compare-prices/Breakfast_Cereals/Doves_Farm_Organic_Gluten_Free_Cornflakes_375g.html

couscous, pasta, white bread, tortillas (you may not have to restrict these , I do, too much bloating)

fruits/ juices:
-orange juice (no pulp)
-pomegranate juice - I live in the UK: http://www.mysupermarket.co.uk/tesco-price-comparison/Longlife_Fruit_Juice/Pomegreat_Pomegranate_And_Blueberry_Juice_Drink_1L.html (no pulp and no apple juice in there, thank heavens)
-semi-ripe bananas
-cherries, (dried) apricots, peaches, plums (these fall under polyols, so try them to see if you have trouble. I don't, used to think otherwise, so you too may be pleasantly surprised!)
-red fruits, berries (they are high in IF, I always eat them with a soluble fibre supplement (SFS))
(all these fruits make a wonderful addition to oatmeal which is v plain and tasteless for me otherwise)


veggies:
-cooked carrots, tomato puree/tomato paste
-black beans (careful - galactans)
-spinach, kale or other leafy greens (with enough SFS!)
-broccoli (I have no trouble as long as it's really well-cooked, and I never eat the stalk, merely the florets)
-peeled roasted peppers
these veggies are the absolutely most healthy ones available (due to high anti-oxidant content on top of them being veggies so naturally full of vitamins and minerals), other veggies which I eat are also healthy even if not as much:
-parsnips, swedes, pumpkins, sweet potato, zucchini (ie courgettes), cucumbers (on their own)
-mushrooms, cauliflower (with SFS)

(also chickpeas probably are in the first group, not had the chance to experiment with them yet but they are v good for you)
there's other beans/lentils that you could try but they contain overall more IF than SF ie probably should eat them with SFS (whereas black beans are not only great cos they have the most antioxidants, but they are also fine for me on their own with additional SFS)

milk substitutes:
-rice milk, soy milk, oatmilk

protein:
-fish, chicken breast, shrimps (and of course, the protein from soy milk)

fat:
-oils
-ground nuts (v healthy!) (but high in fat and have to be balanced out with SFS due to high If content)
-peanut butter (not a nut, but a legume, SF=IF)
-cocoa powder (antioxidants!)

thought you may want to know that vitamin-wise I am taking
-a vitamin B complex supplement - without food
-flaxseed oil tablets which has vitamin E in it - with food
-omega3 fish oil tablet- with food
-zinc every other day -with food
-iron - with orange juice (so it's better absorbed)
-calcium and vitamin D- with evening meal (may faciliate sleep)
(I take these at separate times during the day, usually with at least 2 hours between them)

for me SFS is Benefiber in the UK. no inulin or anything added.

that's it really, so fruits and veggies are of course extremely healthy, but we need grains/carbs too, and you especially if you are trying to eat more! btw my brother's required grain-carb intake consists of bread 80% and he's v fit/healthy.
if you have a sweet tooth I suggest you try those fruits, nice calorie boost!

Best of luck, hope this helps!

--------------------
now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)

before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010


FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml


[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]

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Re: for susie 1985 new
      #365443 - 07/07/11 06:40 PM
skh

Reged: 08/05/09
Posts: 151


thanks for the information!..what do u do with cocoa powder?..add it to milk?...i eat alot of the same proteins as you but i never eat fruit..i will try the ones you mentioned...still seems like i just can't eat enough to gain though...fat is a major problem for me...i have to be so careful or i get sick and it makes me loose weight again..i wish there was a drink with tons of calories i could drink but they all seem to have dairy in them...and i like choc almond milk but i think it's too fatty as well...at least it seemed to be when i tried it...and smoothies worked for a while but then one day i got sick from a banana and oj and rice milk drink..i never drank one again b/c it was such a major set back...

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Re: for susie 1985 new
      #365444 - 07/08/11 01:20 AM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

thanks for the information!..what do u do with cocoa powder?..add it to milk?...i eat alot of the same proteins as you but i never eat fruit..i will try the ones you mentioned...still seems like i just can't eat enough to gain though...fat is a major problem for me...i have to be so careful or i get sick and it makes me loose weight again..i wish there was a drink with tons of calories i could drink but they all seem to have dairy in them...and i like choc almond milk but i think it's too fatty as well...at least it seemed to be when i tried it...and smoothies worked for a while but then one day i got sick from a banana and oj and rice milk drink..i never drank one again b/c it was such a major set back...




I've been using Silk Chocolate Soy Milk as a high calorie drink. It definitely makes it much easier to gain. A tall glass is around 240 calories I believe, and it's extremely easy to drink. I don't believe I have a problem with it, although I haven't been able to determine if it's completely safe yet. A few glasses a day certainly helps make it easier to gain.

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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Re: for susie 1985 new
      #365445 - 07/08/11 07:58 AM
shelgirl

Reged: 09/22/09
Posts: 205
Loc: Wisconsin

I too desperately wish I could gain back some weight...I just keep loosing. Unfortunately soy and chocolate are two things I just can't tolerate. I wonder if drinking just plain vanilla almond milk would work...

--------------------
IBS-D. Eating gluten and dairy free.

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re cocoa powder, mainly new
      #365449 - 07/08/11 10:06 AM
Susie1985

Reged: 05/04/11
Posts: 211


I suppose you could have cocoa powder with rice milk (with soy or almond milk, it would probably mean too much fat overall, which for me is a huge problem.) sugar is unhealthy, but there is something called xylitol. it still has calories, but it's much better for your health all round. http://en.wikipedia.org/wiki/Xylitol
but if you have problems with polyols, it may be a no-go area. if not however, you could add that to almond or soy milk/bake cakes/ cookies with it too! careful with cakes in general however, as there's eggs and oil in them, so fat may still be a problem if there's not enough other calorie-laden ingredients in there. the trouble with fat is that one tablespoonful of oil has 120kcal. and remember 1g of fat has 9kcal, whereas 1g carb or 1g protein only 4kcal. so I suggest that especially if you want to boost your calorie-intake, calculate that a meal has enough fat in it that you can tolerate. (ie with a piece of bread, so how many calories that is, and then add a certain amount of peanut butter) for something non-sweet, either on potatoes or rice or barley, you could always add flaxseed oil. v good for you, omega-3 source! but again careful with the calories coming from all that fat.

I also eat cocoa powder with my oats and red berries. I cook these all together in the microwave and think it's delicious.

you could also try white rice with a bit of cocoa powder, surely you can cook it together, or make a rice pudding? or same with barley? barley is v plain on its own, it takes up the flavour of anything I find, it can be good for sweet dishes. or non-sweet ones, in say soups.

it's challenging to cook from normal recipes I find, but that may be because I don't just eat low-fat, but also low-carb. but it's do-able. any recipe you may find on the internet, often you have to tweak the ingredients a little, don't put forbidden ones in there, use less oil, and you may just find that it's still delicious.

I will now go to the recipe message board and post a recipe or two of mine, you may want to give those a go if you fancy.

PS There were some foods which I ate at one time, then had huge problems and then associated it so much with the subsequent pain that i never ate that food for two years. until I looked into the science (that diet I posted is entirely based on science, (many thanks to Syl without whom I'd have never been able to compile it)) and then found that indeed, it was not that food that caused me the pain but probably something I'd eaten two days before. Sometimes foods and the trouble they cause have a delayed effect. more pertinently, that banana and oj and rice milk drink, what else did it have added/ was it bought in a shop? maybe you could make your own, pure rice milk and oj and bananas all seem safe ingredients from an IBS/fructose point of view.


--------------------
now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)

before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010


FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml


[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]

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Re: for susie 1985 new
      #365455 - 07/08/11 01:13 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

I too desperately wish I could gain back some weight...I just keep loosing. Unfortunately soy and chocolate are two things I just can't tolerate. I wonder if drinking just plain vanilla almond milk would work...




In my struggles with gaining weight illustrated in this thread, I have found that getting calories in liquid form is so much easier than going through the process of cooking an entire meal.

When I'm at home, I try and cook about 4 IBS/FM friendly meals a day at around 800 calories each. I then throw in a few glasses of the chocolate soy milk to make up the difference. I find that life often gets in the way, though, and I don't always have time to cook all of these meals. What I do on those days is drink a little more of the chocolate soy milk (rice/almond milk would definitely work as its still calories) to catch back up on calories.

Anyone else drink that stuff? I believe it's safe for me, but I'm not 100% on it yet. As Susie said, some things hit you a couple days after so it's really tough to tell.

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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for ibshelpwanted new
      #365459 - 07/08/11 10:25 PM
skh

Reged: 08/05/09
Posts: 151


yes i tried the dark choc almond milk and loooved it..but i started looking at the sugar content and it just seems so unhealthy...i can't remember if it caused me any issues though..i stopped buying it b/c i was worried about so much sugar... ..i just want something healthy and good for me that will add some lbs...i've yet to figure out what that might be!

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Re: for susie 1985 new
      #365460 - 07/08/11 10:30 PM
skh

Reged: 08/05/09
Posts: 151


i bet plain almond milk would help..i have bought it before when i tried it in smoothies...but i went back to rice milk when i got so sick from my last smoothie...i don't really drink milk now unless i eat ceral b/c i'm afraid of the fat..rice milk seems to be the easiest to drink for me...but it's not going to add lbs!!

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Re: re cocoa powder, mainly new
      #365461 - 07/08/11 10:42 PM
skh

Reged: 08/05/09
Posts: 151


thanks for the suggestions! to be honest i don't bake. i barely cook! i've had to learn how to cook for myself but it's not very good..chicken and chicken i like cake and cookies but i want something not really sugar related i guess to be able to eat or drink daily to add some lbs...i want to feel healthy again!! i don't have any energy at all..ever...sorry to ramble..thanks again...

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Re: for ibshelpwanted new
      #365464 - 07/09/11 12:17 AM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

yes i tried the dark choc almond milk and loooved it..but i started looking at the sugar content and it just seems so unhealthy...i can't remember if it caused me any issues though..i stopped buying it b/c i was worried about so much sugar... ..i just want something healthy and good for me that will add some lbs...i've yet to figure out what that might be!




I used to be an extremely healthy eater and have had to completely revamp my diet. I have yet to find a way to pack on pounds while eating under the IBS and FM guidelines, without eating a little unhealthy. It's certainly possible, but it sure is difficult....and time consuming. I'm still searching for quick, healthy alternatives to grab when I don't have time to cook 5+ meals in a day. In the meantime, I'm eating super healthy for like 2/3rds of my calories and then eating/drinking the following:

Silk Choc Soy Milk
Baked Lays/Ruffles (only brand I seem to do ok with)
Guacamole or Hummus w/ Baked Tostitos
Blueberry Muffins/Banana Bread

I'm trying hard to replace the above, high calorie items with healthy alternatives that are quick to grab. So far, I'm still searching. At least this seems to work in the meantime and might provide some alternatives for you. If I can be decently healthy, feel moderately okay, and pack on the pounds, I'm ok with that for a while.

Of course, as you can see in this thread, I'm doing great for many of the weeks, and then seem to lose all of my gains rather quickly while traveling and eating really bad food.

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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Re: for susie 1985 new
      #365465 - 07/09/11 12:24 AM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

i bet plain almond milk would help..i have bought it before when i tried it in smoothies...but i went back to rice milk when i got so sick from my last smoothie...i don't really drink milk now unless i eat ceral b/c i'm afraid of the fat..rice milk seems to be the easiest to drink for me...but it's not going to add lbs!!




I don't see why rice milk wouldn't add weight. You'll have to drink a lot of it, though, and it would get fairly expensive rather quickly. I see that an 8oz glass of rice milk has 120 calories, whereas a small 8oz glass of choc soy milk is 140. A regular glass of whole milk is 150 calories and I know many people who drink an entire gallon a day as a way to gain weight. Drinking an extra 3 tall (12-15oz) glasses of rice milk a day would be enough to gain 1 lb per week.

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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Re: for susie 1985 new
      #365466 - 07/09/11 01:41 AM
Susie1985

Reged: 05/04/11
Posts: 211


vegetables you can just boil btw and they are v healthy. not much cooking going on there! also not many calories, admittedly.

did either of you try drinking more orange juice btw? unless you have acid reflux, it should be problem-free, healthy and IBS-friendly.

or berry juice?


again chocolate soy or almond milk is a good idea, unless there's a lot of fat in there. but rice milk is no-fat and hence as we'd discussed, add cocoa powder to make it chocolate-y?

if you can tolerate ground nuts, would be great, they are v high in fat, but see the recipe I posted on the other, recipes board about the banana-nut butter, v easy to make, will keep in the fridge for at least a week and can use it as a spread on toast for instance. it's delicious and v healthy and relatively high in calories and good fat-protein-carb balance. (I find it difficult to stop eating it!)

--------------------
now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)

before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010


FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml


[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]

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Re: for susie 1985 new
      #365467 - 07/09/11 01:09 PM
Gerikat

Reged: 06/21/09
Posts: 1285


Whoops, posting to wrong thread.

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It depends on the vegetable and purpose new
      #365468 - 07/09/11 01:27 PM
Syl

Reged: 03/13/05
Posts: 5499
Loc: SK, CANADA

Have a look at the Harvard Medical School article Microwave cooking and nutrition

"...this is nutrition, and nothing in nutrition is simple. Italian researchers published results in 2008 of an experiment comparing three cooking methods — boiling, steaming, and frying — and the effect they had on the nutritional content of broccoli, carrots, and zucchini. Boiling carrots actually increased their carotenoid content, while steaming and frying reduced it".

No matter which you choose reserve the water and use it for sauces and other things since it contains water soluble B vitamins and other useful nutrients

--------------------
STABLE: ♂, IBS-D 50+ years - Science of IBS

The FODMAP Approach to Managing IBS Symptoms
Evidence-based Dietary Management of Functional GI Symptoms: The FODMAP Approach
FODMAP Chart & Cheatsheet
The Role of Food & Dietary Intervention in IBS

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Re: for susie 1985 new
      #365469 - 07/09/11 02:34 PM
Gerikat

Reged: 06/21/09
Posts: 1285


Darn, did the same thing again.

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Re: for susie 1985 new
      #365473 - 07/09/11 09:22 PM
skh

Reged: 08/05/09
Posts: 151


i do eat veggies but not as much as i should b/c of FM and IF issues, but no those are not going to help with weight gain...but i didn't realize rice milk didn't have fat..so i might give that a try and drink it maybe at nite after dinner..i was afraid to drink it on an empty stomach though..i think cocoa powder might be good in it!!..i did try oj but i felt alittle like the acid was giving me issues..not with reflux i don't seem to have that problem (knock on wood) but just felt as though it made me dehydrated feeling??..that probably doesn't even make sense..don't know how to explain what it felt like to me though..thanks for all the help!..oh so the banana nut butter sounds very good..it must be eaten sparingly though right?..b/c of the IF in the nuts?..

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Re: for susie 1985 new
      #365474 - 07/09/11 09:36 PM
skh

Reged: 08/05/09
Posts: 151


i'm going to try the milk, both the choc almond and plain rice and get some cocoa powder...as a matter of fact i'm fixin to go get me a glass of rice milk right now!!.thanks so much!

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Re: for susie 1985 new
      #365476 - 07/09/11 11:20 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


I just recently rediscovered OJ, without pulp, and have been drinking the stuff nonstop. I originally thought I could not drink it, but recently I have felt decent while drinking it. I sometimes get a light headache and some heartburn, but it's certainly tolerable and I love OJ!

What type of berry juice do you drink? I try hard to get more fruits and vegetables in, but the FM seems to make it tough

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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Re: for susie 1985 new
      #365477 - 07/09/11 11:27 PM
IBSHelpWanted

Reged: 03/15/10
Posts: 43


Quote:

i do eat veggies but not as much as i should b/c of FM and IF issues, but no those are not going to help with weight gain...but i didn't realize rice milk didn't have fat..so i might give that a try and drink it maybe at nite after dinner..i was afraid to drink it on an empty stomach though..i think cocoa powder might be good in it!!..i did try oj but i felt alittle like the acid was giving me issues..not with reflux i don't seem to have that problem (knock on wood) but just felt as though it made me dehydrated feeling??..that probably doesn't even make sense..don't know how to explain what it felt like to me though..thanks for all the help!..oh so the banana nut butter sounds very good..it must be eaten sparingly though right?..b/c of the IF in the nuts?..




I might know what you mean about the dehydration issues. I tend to notice that I get "tired" around my eyes first, and then it starts to spread to my entire body sort of like I am dehydrated, although I am not. I then will get a little tired shortly afterwards. I haven't pinpointed what causes this, but it happens frequently.

I always wonder if I am starting to overanalyze everything. I never had even gone to a doctor in my entire life for any issues up until the last year and a half. However, I believe I've made a ton of progress. At first I thought things might be caused by stress, but food is definitely a huge problem for me. I'm currently going through more stress than I have in a very long time, but I feel 10x better than I did just a year ago with changes made by recommendations on this board.

Now, if I could just figure out this weight issue. If I eat food I feel good with, I seem to gain a lot more weight than food that I do not feel good with. With a year and a half worth of records, there is definitely something going on. I guess it just means I should stick with good food.

--------------------
----------------------------------------------
Likely IBS-C and Fructose Malabsorption
Undiagnosed and going through testing process

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juice new
      #365478 - 07/10/11 01:06 AM
Susie1985

Reged: 05/04/11
Posts: 211


pulp is all IF, so have to be careful with fruit juices!
I drink pulp free OJ
and in Britain we have this:
http://www.mysupermarket.co.uk/tesco-price-comparison/Longlife_Fruit_Juice/Pomegreat_Pomegranate_And_Blueberry_Juice_Drink_1L.html

http://www.mysupermarket.co.uk/tesco-price-comparison/Longlife_Fruit_Juice/Pomegreat_Pomegranate_Juice_Drink_1L.html

fantastic. in America as far as I saw all berry juices are with apple, so I couldn't drink that

--------------------
now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)

before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010


FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml


[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]

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Re: for susie 1985 new
      #365479 - 07/10/11 01:17 AM
Susie1985

Reged: 05/04/11
Posts: 211


some rice milk does have fat, check the ingredients!
non-flavoured one in Britain does not have oil in it!

some people are more sensitive to IF, others to fat, others may be different yet again. think we have to experiment and be patient in that process.

I used to think that I can't do IF v well, but it turns out that unless it's a whole grain, like wheat bran, which I do not have at all, it's OK. I am actually fine with a lot of IF from cooked veggies, non-fructose raw fruits and nuts and a lot of IF at once, provided I have it with enough SF, ie maybe even an SFS, for which I use Benefiber-UK (no inulin) is fine.

I make the banana nut butter with semi-ripe bananas, no brown spots and greenish yellowish in colour, they have a lot of resistant starch which acts as SF! so for me it is balanced out. more problematic is the fat, but it's all calculated and maths tells me that around 1tablespoonful of ground nuts (max 30kcal from fat) and a medium-sized semi ripe banana (100kcal from non-fat) work well together and are safe from both a fat point of view (calories less than 25 per cent coming from fat) and IF is balanced out by the SF-like stuff in bananas.

Please note that some sufferers may have to limit the overall IF intake as well and even with a lot of SF cannot have huge amounts of IF. I suggest you experiment! (but only with one thing at a time, remember there may a delay in a food's effect)

--------------------
now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)

before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010


FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml


[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]

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Re: for susie 1985 new
      #365492 - 07/11/11 09:25 PM
skh

Reged: 08/05/09
Posts: 151


I might know what you mean about the dehydration issues. I tend to notice that I get "tired" around my eyes first, and then it starts to spread to my entire body sort of like I am dehydrated, although I am not. I then will get a little tired shortly afterwards. I haven't pinpointed what causes this, but it happens frequently.

I always wonder if I am starting to overanalyze everything. I never had even gone to a doctor in my entire life for any issues up until the last year and a half. However, I believe I've made a ton of progress. At first I thought things might be caused by stress, but food is definitely a huge problem for me. I'm currently going through more stress than I have in a very long time, but I feel 10x better than I did just a year ago with changes made by recommendations on this board.

Now, if I could just figure out this weight issue. If I eat food I feel good with, I seem to gain a lot more weight than food that I do not feel good with. With a year and a half worth of records, there is definitely something going on. I guess it just means I should stick with good food.




i agree...i feel tons better too just with learning about SF and how i should be eating..but it's still so hard b/c i was one of those people that could eat cupcakes for breakfast and coke and coffee..etc...i never even thought about tummy issues..it was non existent...i was so jealous of a girl at work today..she was going to get some ensure to gain weight..i was thinking "man..wish it was that easy"..she doesn't have ibs..lucky girl!..

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Re: weight gain new
      #365497 - 07/12/11 01:37 PM
Susie1985

Reged: 05/04/11
Posts: 211


only thing I can again advise is find something which has calories and is not totally unhealthy and you find delicious and eat throughout the day, every hour/two hours.

I can't really sympathise if I'm honest cos I've had more problems with binge eating over my life than with trying to gain weight. I like food too much.

--------------------
now: stable through EFI+FODMAP dieting (no lactose/no fructose/some fructans and some polyols)

before: IBS-D(pseudo-diarrhoea), bloating, often unbearable pain esp from too much fat: Apr 2007- Dec 2010


FODMAPs: http://www.todaysdietitian.com/newarchives/072710p30.shtml


[I've tried VSL#3 -> I could tolerate v good amounts of IF (even with less SF), it worked great (but overall I find it too expensive)]

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Re: weight gain new
      #365501 - 07/12/11 09:48 PM
skh

Reged: 08/05/09
Posts: 151


well i always loved food too...food has become unenjoyable b/c of the pain, etc..i also have less of an appetite now it seems..i have lost so much that i look unhealthy..that's why i really want to gain...i look tired and fraile which is depressing...thanks again for all the suggestions..i appreciate it!

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Re: weight gain new
      #366763 - 01/29/12 10:13 AM
rebeccaneal

Reged: 01/29/12
Posts: 16


Hi skh,

I just wanted to let you know that I have been having major issues with trying to gain weight over the past few years and like you I used to love eating (still do when I feel well!) but it just gets tricky when you want to avoid the IBS consequences of eating....

If it helps, these are the sort of things I snack on to try and get the calories in:

sweet oaty biscuits, savoury oat biscuits with peanut butter, rice milk and maple syrup in my porridge (I whizz the oats in my food processor so they're less filling!)

Of course it really depends what your trigger foods are, for instance peanut butter on crackers doesn't seem to bother me even though it's high fat... biscuits and things aren't too filling which is why I think they're handy, and they aren't always too unhealthy :-P

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