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Re: 11 year old daughter been in pain every night for a year! new
      #244103 - 02/04/06 08:23 AM
PaulineNZ

Reged: 02/02/06
Posts: 26


Hi Shawneric, she has had routine bloods - all clear. Specialist called for extra tests which we will get the results of next Tuesday. She has had repeat faecal tests for parasites - clear. Bacteria (faeces) we will get the results on Tuesday.
She has had a barium swallow and follow - thru - this was clear, showed not inflamation - radiologist said this basically ruled out crohns disease. Thanks goodness.

Thanks for taking your time it is appreciated.
Pauline

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Confused new
      #244105 - 02/04/06 08:36 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Quote:

If she has got the antibodies it means it is
not the gluten that is causing the problem but probably the wheat




Doesn't the positive antibodies mean it is gluten that is the problem? Or were you talking about the wheat antibodies? In the states, here, I don't think they have separate tests for gluten antibodies and wheat antibodies.

That is marvelous that you have found this doctor for your daughter. what is her name? How is she doing?

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Confused new
      #244107 - 02/04/06 08:44 AM
PaulineNZ

Reged: 02/02/06
Posts: 26


Hi there, oops yes I knew I would put the wrong thing LOL
I will know more on Tuesday - hopefully.

Gabrielle was very sore last night - finally groaned herself off to sleep poor kid at about 10 pm.

Thanks
Pauline

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Re: Confused new
      #244111 - 02/04/06 08:49 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

Well, I'm still not sure what you mean...but please let us know how the doctor's appointment goes on Tuesday.

What a pretty name! My heart aches for this childd. It's one thing to be in pain and be an adult...but not fair that a 12 year old should have to be dealing with this already. I hope you find some answers. Heather had trouble starting at age 9 and look at how wonderful she is doing now!

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Confused new
      #244115 - 02/04/06 08:54 AM
PaulineNZ

Reged: 02/02/06
Posts: 26


Sorry, I meant I had written the wrong thing. I should have written if she has the antibodies then it is gluten,instead I wrote the opposite by mistake. Sorry to have caused you such confusion.

This started just after she turned ten and she has just turned 11. I am going to try and see if I can order Heather's books I think they will be very beneficial.

Thanks for caring and listening to my sharing.
Blessings
Pauline

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Re: Confused new
      #244162 - 02/04/06 02:25 PM
Honey mix

Reged: 11/16/05
Posts: 285
Loc: USA wish it was England

I"m 12 I've had IBS sense 9 the best thing i do is eat pasta and french bread AND ABSOLUTLY STAY AWAT FROM DAIRY AND DEEP FRIED FATTY FOODS. Also try to relax her with some tea it really helps! cheers

--------------------
Puppies Are Cute But I'm Cuter

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Question for shawneric new
      #244195 - 02/04/06 06:45 PM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

So this article is saying that people with IBS have shown to have an intolerance for wheat but not necessarily all gluten? Meaning Spelt breads, oats, and barley would be okay? Well, maybe not barley because that was also listed.

And it sounds like the one article is also suggesting that SF is easier to handle than IF...just like Heather says, right.



--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

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Re: Question for shawneric new
      #244209 - 02/04/06 11:40 PM
shawneric

Reged: 01/30/03
Posts: 1738
Loc: Oregon

Augie,

The questions are actually complex and I will try to shed some light on it all for you and remember its just my perceptions and some of my own personal understanding of it all.

First, I am not sure if you know this but I am also a chef. I don't personally eat a lot of wheat because it can bug me and I am not especially found of it anyway. Also, I don't eat a lot of fructose or juices with high acidity. They can sometimes be triggers to the underlying IBS and problems.

I have had IBS for thirty five years now and have been studying it a long time with a lot of help and its a lot to learn. My own IBS, I believe was caused by amoebic dysentery when I was ten in Mexico. It fits pretty "classic IBS" and I alternate. My IBS in the past has been severe for sure and its still important for me to manage it.

Not all IBSers might have a problem with wheat although its probably a pretty good proportion, it maybe individual still. There may also be other reasons besides intolerences or allergic reactions, but how foods are chemical broken down to make chemicals in the body that run the body. For example they know there are issues with serotonin in the gut. These are some examples kindof, but its much deeper then this in regards to foods and the gut.

"L-Tryptophan and Carbohydrates
L-tryptophan may be found in turkey and other dietary proteins, but it's actually a carbohydrate-rich (as opposed to protein-rich) meal that increases the level of this amino acid in the brain and leads to serotonin synthesis. Carbohydrates stimulate the pancreas to secrete insulin. When this occurs, some amino acids that compete with tryptophan leave the bloodstream and enter muscle cells. This causes an increase in the relative concentration of tryptophan in the bloodstream. Serotonin is synthesized and you feel that familiar sleepy feeling.


Fats
Fats slow down the digestive system, giving Thanksgiving dinner plenty of time to take effect. Fats also take a lot of energy to digest, so the body will redirect blood to your digestive system to tackle the job. Since you have less bloodflow elsewhere, you will feel less energetic after eating a meal rich in fats."

I asked one of the leading experts on IBS about foods.

"Since I have suffered for thirty years of IBS I wonder what role foods play in IBS. So I asked Dr Douglas Drossman at the UNC Center for Functional GI and Motility disorders and here was his response. This is not a substitute for seeking medical advise from your doctor on any specific conditions you may have, but for educational purposes only.

Dr. Drossman is a Co-director of the Center and Professor of Medicine and Psychiatry at UNC-CH. He established a program of research in functional gastrointestinal disorders at UNC more than 15 years ago and has published more than 250 books, articles, and abstracts relating to epidemiology, psychosocial and quality of life assessment, design of treatment trials, and outcomes research in gastrointestinal disorders.


Dr Drossman's comments on foods for IBS Health.

Shawn,
To say that people with IBS may get symptoms from food intolerances is an acceptable possibility, since the gut will over react to stressors of all types including food (high fat or large volumes of food in particular). Futhermore, there can be specific intolerances. So if you have a lactose intolerance for example, it can exacerbate, or even mimic IBS. Other examples of food substances causing diarrhea would be high consumers of caffeine or alcohol which can stimulate intestinal secretion or with the latter, pull water into the bowel (osmotic diarrhea). The same would be true for overdoing certain poorly absorbed sugars that can cause an osmotic type of diarrhea Sorbitol, found in sugarless gum and sugar substituted foods can also produce such an osmotic diarrhea. Even more naturally, people who consume a large amount of fruits, juices or other processed foods enriched with fructose, can get diarrhea because it is not as easily absorbed by the bowel and goes to the colon where it pulls in water. So if you have IBS, all of these food items would make it worse.

However, it is important to separate factors that worsen IBS (e.g., foods as above, stress, hormonal changes, etc.) from the cause or pathophysiology of IBS. Just like stress doesn't cause IBS, (though it can make it worse), foods must be understood as aggravating rather than etiological in nature.

The cause of IBS is yet to be determined. However, modern research understands IBS as a disorder of increased reactivity of the bowel, visceral hypersensitivity and dysfunction of the brain-gut axis. There are subgroups being defined as well, including post-infectious IBS which can lead to IBS symptoms. Other work using brain imaging shows that the pain regulation center of the brain (cingulate cortex) can be impaired, as well as good evidence for there being abnormalities in motility which can at least in part explain the diarrhea and constipation. So finding a specific "cause" of IBS has grown out of general interest in place of understanding physiological subgroups that may become amenable to more specific treatments. Hope that helps.
Doug "


This is also pretty good on:

Food Allergy and Intolerances

By The National Institute of Allergy and Infectious Diseases
WebMD Public Information from the National Institutes of Health

Food allergies or food intolerances affect nearly everyone at some point. People often have an unpleasant reaction to something they ate and wonder if they have a food allergy. One out of three people either say that they have a food allergy or that they modify the family diet because a family member is suspected of having a food allergy. But only about three percent of children have clinically proven allergic reactions to foods. In adults, the prevalence of food allergy drops to about one percent of the total population.

This difference between the clinically proven prevalence of food allergy and the public perception of the problem is in part due to reactions called "food intolerances" rather than food allergies. A food allergy, or hypersensitivity, is an abnormal response to a food that is triggered by the immune system. The immune system is not responsible for the symptoms of a food intolerance, even though these symptoms can resemble those of a food allergy.

It is extremely important for people who have true food allergies to identify them and prevent allergic reactions to food because these reactions can cause devastating illness and, in some cases, be fatal."

http://www.webmd.com/content/article/5/1680_50303.htm

People can also have more then one condition going on which makes it all even harder to figure out.

Some may have celiac or a wheat sensitvity through an immune reaction or an intolerence.

However, a big part of IBS and eating is the act of eating itself. There are problems with this and the bowel can over react to basically the amount of calories in the meal itself and fat content etc.. Even the schedule a person keeps in eating.

The next thing is something called a mast cell and I will post on that for you next.

so this is possible

"an intolerance for wheat but not necessarily all gluten? "

This is individual.

"Meaning Spelt breads, oats, and barley would be okay? Well, maybe not barley because that was also listed. "

I am not sure what this means, SF and IF?

And I highly respect Heathers information.











--------------------
My website on IBS is www.ibshealth.com


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Questions about food and eating for my daughter new
      #244251 - 02/05/06 11:00 AM
PaulineNZ

Reged: 02/02/06
Posts: 26


Hi there, firstly I want to thank each and everyone for their great caring and educational postings. It is the first time in a year that as a parent I haven't felt so 'alone'. Next I need to ask some questions they may seem really stupid questions but please bear with me :-)

First I am just going by what is on the site, I have not been able to order the book into NZ as yet.
In the IBS cheat sheet it says under soluble fiber

Make the basis of all meals and snacks. First thing to eat on an empty stomach.

Does this mean that if say Gabrielle has her breakfast bowl in front of her with g/f cereal and peaches and rice milk, that she is to eat a large portion of just the cereal before she can touch the peaches?

Also at lunch i.e baked potato stuffed with chicken bacon and mushrooms and vege
Is she to eat nearly all of the baked potato and then have some vege.

Dinner, Brown rice with chicken and stirfry.
Should she eat nearly all the rice and chicken before eating any vege.

You're probably wondering if I have 'normal intelligence'
by asking such questions - it's just that I am desperate to help Gabrielle. She has been having her cereal and fruit but eating it together, not putting the cereal in her tummy first and then adding the insoluble fibre. Also with the baked stuffed potato, she would eat say 1/4 of it and then just eat her vege with her potato i.e. together in each bite.
Likewise with the rice, chicken and vege, she would eat it all together i.e. like a fried rice (but not fried) and therefore the insoluble fibre is going in at the same time as the soluble fibre.


I am embarrassed to even post this really as I am sure it is so 'elementary' to you all, just wondered if I was missing something by not having the book yet and clicked that this maybe why she isn't getting better.

Also she is better on the days that she has had no fruits or vegetables not even the safe soluble fibre ones, but I struggle with her not having a balanced diet i.e. with red meat and dairy gone, she doesn't like the calcium fortified rice milk, so only has the bare necessity, can't have soy cheese or anything like that, and because of her weight loss, I just am really hesitant to take fruit and vege out of her diet (we have always eaten large amounts of fruits and vegetables as a family).

Anyway I hope something in here makes sense and that you don't write me off as a 'nut case' if you haven't already LOL

Thanks heaps
Pauline


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Re: 11 year old daughter been in pain every night for a year! new
      #244252 - 02/05/06 11:26 AM
penpal

Reged: 01/19/06
Posts: 56
Loc: Pacific Northwest

I have also had predominently nighttime IBS pain for the past seven years. My heart goes out to your daughter, I hope she gets some relief soon.

You mentioned that she eats bacon. That is a definite trigger for me and I've given up eating it, even in small amounts. Stir fried veggies would also give me a hard time because the vegetables are not cooked very much, plus the oil is hard to digest, but everyone is different. As you have probably seen on this forum, everyone has different trigger foods or foods they can tolerate with no problem.

Do you have almond milk in NZ? I really like the taste and I've recently found some hazelnut milk, which is delicious.

I think it's a good idea for your daughter to eat the soluble fiber first to get a "buffer" in her system before eating any protein or insoluble vegetables or fruit. I enjoy eating applesauce instead of raw apples - this seems to be less irritating for me. I'm totally avoiding "gassy" veggies like broccoli, brussels sprouts and cabbage and this seems to have alleviated my symptoms a bit. I used to like my veggies barely cooked, but now I cook them till they're soggy!

Foods like sweet potatoes, steamed fennel, well-cooked or canned asparagus, boiled celeriac root (cooked like mashed potatoes) are good alternatives for me.

I hope Gabrielle soon feels better.

--------------------
Penny

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