All Boards >> Eating for IBS Diet Board

Posts     Flat       Threaded

Pages: 1 | 2 | 3 | 4 | 5 | 6 | (show all)
link for living without magazine new
      #243719 - 02/02/06 06:59 PM
hawkeye

Reged: 06/16/03
Posts: 705
Loc: NYC

www.livingwithout.com
latest issue has an interview with Sarah Vowell who did the voice for the daughter in "The incredibles" and is a writer and radio commentator on npr.

--------------------
Ladies & gentlemen take my advice, pull down your pants and slide on the ice.

Print     Remind Me     Notify Moderator    

Sorry she's suffering new
      #243773 - 02/03/06 07:13 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

That must be so hard for you to see your child in pain.

I also have pain every single day and night. Nothing has helped.

I did the gluten free diet too....but all made my constipation so bad. Are you sure the gluten free diet isn't making her more constipated? My doctor said all the rice products can be constipating. It sure makes me more constipation. I've tried adding some gluten back to my diet to see if helps the constipation...even though I had gluten antibodies. I hate the constipation too much.

Have you had her tested for celiac before she went on the gluten free diet? It's too late now because she is already eating GF.

Is she following Heather's diet? Taking an SFS or any supplements such as fennel tea or peppermint tea/capsules?

I know this is confusing and so hard. But keep us updated and I hope we all find some relief in time.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

Print     Remind Me     Notify Moderator    

Also wanted to add... new
      #243781 - 02/03/06 07:30 AM
Augie

Reged: 10/27/04
Posts: 5807
Loc: Illinois

...that you said your daughter was on a low lactose diet. I would suggest you go totally lactose, casein, dairy free. Lactose, even in small amounts, can do more harm than you realize...and it might not be an immediate reaction. Lactose taken in the day may not produce symptoms until later.

I have awful pain at night. I can make it through the day, somehow....but night time it hits like a knife. The pain and gas and cramps are just terrible.

--------------------
~ Beth
Constipation, pain prodominent,cramps, spasms and bloat!

Print     Remind Me     Notify Moderator    

Re: Thanks for your input everyone, please keep it up! new
      #243789 - 02/03/06 07:49 AM
Nelly

Reged: 08/06/04
Posts: 4381
Loc: Within stray mortar fire of DC

Not at all! If I can help just one person avoid one painful attack, I can feel that all the misery I've been though can be of use to someone!

I make mistakes with my diet all the time (I put the "error" in trial and error!), and have sabotaged myself on purpose more than once just to feel "normal" in a social setting. It's no fun being sick, and it's worse feeling you have to treat yourself as sick, and that's as your friends see you as well. That's why these boards are so great cos we're in the same boat, and it's a big boat where there are no losers or failures!!

The diet is going to be bland at first so perpare yourself to reap the backlash from your DD (Darling Daughter). The main thing is she needs to get out of pain, so food is only for survival right now. It'll get better! So no caffiene (includes tea!) or known triggers for the moment. Here's a link to the diet parameters: http://www.helpforibs.com/diet/

Come here for support any time you need to~!

~nelly~

Print     Remind Me     Notify Moderator    

Re: 11 year old daughter been in pain every night for a year! new
      #243828 - 02/03/06 09:27 AM
shawneric

Reged: 01/30/03
Posts: 1738
Loc: Oregon

PaulineNZ

"She basically goes to bed at the same time each night around 8.30 which is basically 2 hours after dinner."

Try changing the time she goes to bed for a bit, it does not have to be by that much, maybe an hour or so, but this might actually make a difference.

Yes lack of sleep can make it much worse. Sleep is very important.

But the gut has its own time in can run on and changing it sometimes helps.

Its good not to eat before bed, but it can also be hunger signals at night too that can trigger a cascade of signals, so not to go to bed hungry if possible, perhaps a very small snack to stop any hunger signals.

Problems already found in IBS have to do with stress and anxiety, even though they are not the cause of IBS and pain is very much tied into how you are feeling, even the IBS itself is enough, regardless of outside stressors, but thinking about school work the night before can add to the problems. For her worrying about attacks every night is enough for this system to be in disharmony.

I really suggest you try Mike's tapes for this, because they help with pain and can make you sleep better, as well as working on global symptoms for IBS. I wish I did them when I was ten, it would have saved me a whole lot of pain and symptoms.

This really does sound like IBS or perhaps CFAP and that is really the way to treat it at the moment and see if she improves.

Laying on her left side might help also when she goes to bed.

"Not a worrier, nor a stressor."

This doesn't matter all that much, because what were talking about here is a responce to all stressors mental and physical.

Pain and stress in IBS are VERY inter-related. The brain and the gut are both operational to cause the symptoms.


This is something important in IBS and pain and symptoms. It is not really well understood by a lot of IBSers.

"Posted on Thu, Jan. 19, 2006
Stress can wreak gastrointestinal havocStress doesn't cause irritable bowel syndrome or other gastrointestinal problems -- but it can make the symptoms worse.
The gastrointestinal tract is governed by the autonomic nervous system, the nerve network that serves internal organs and works mostly without our thinking about it. The autonomic system has two parts: the sympathetic nervous system, which activates in stressful situations; and the parasympathetic nervous system, the counterpart that promotes quiet activities (such as digestion).
When stress occurs -- work problems, disagreements, money woes or true danger -- the sympathetic nervous system goes into high gear. Your body responds in fight-or-flight mode, prepared to face or run away from danger, even if the "danger" is a traffic ticket or a teenager driving you crazy.
When the sympathetic system is in charge, in essence, your gastrointestinal system turns off. The body is not worried about digestion when it's geared up to respond to an emergency.
That is the motor side of things; yet the gastrointestinal system also has a sensory side. The autonomic nervous system sends sensory signals to the brain. During times of stress, our brains are looking for clues from all over; our bodies are more vigilant about sensing what is going on. Under stress, the gut feels more and does less. For anyone, stomachaches and diarrhea are common symptoms of stress.
So it's no surprise that stress can intensify symptoms of gastrointestinal conditions.
With irritable bowel syndrome, a chronic condition with symptoms that include abdominal pain, cramping, gas, diarrhea and constipation, the severity of symptoms varies widely.
For many people, managing stress is the first line of treatment, along with changes in lifestyle and diet. Medication can be helpful for people with more severe symptoms.

SOURCE: Mayo Foundation for Medical Education and Research

http://www.sanluisobispo.com/mld/dfw/news/news_to_use/13661149.htm?source=rss&channel=dfw_news_to_use

The fight or flight triggers whats called the HPA axis which releases a chemical (histinmine) from mast cells in the gut that contributes to pain. Its complex.

You might want to read this also.

These are pediactri pain specialists.

Mind-Body-Pain Connection: How Does It Work?

By Michael Henry Joseph
WebMD Live Events Transcript

Event Date: 05/11/2000.

Moderator: Welcome to WebMD Live's World Watch and Health News Auditorium. Today we are discussing "The Mind-Body-Pain Connection: How Does It Work?" with Brenda Bursch, Ph.D., Michael Joseph, M.D., and Lonnie Zeltzer, M.D.

Brenda Bursch, Ph.D., is the Associate Director of the Pediatric Pain Program, Co-Director of Pediatric Chronic Pain Clinical Service and Assistant Clinical Professor of Psychiatry & Biobehavioral Sciences at UCLA Department of Pediatrics in the School of Medicine. She has written about asthma, developmental & behavioral pediatrics, emergency medicine, AIDS education and prevention, chronic digestive diseases and pediatric bowel disorders. She has membership in the American Pain Society, American Psychological Association, Munchausen Syndrome by Proxy Network, and the UCLA Center for the Study of Organizational and Group Dynamics.

Michael Henry Joseph, MD, is an assistant professor of pediatrics and co-director of Chronic Pain Services at the University of California at Los Angeles Children's Hospital. He is a recipient of the Golden Apple Award for Excellence in Teaching.

Lonnie Zeltzer, M.D., is an expert in the field of pediatric pain. She is a former president of the Society for Adolescent Medicine and member of the National Institute of Health?s Human Development Study Section. She is currently a Professor of Pediatrics and Anesthesiology at the UCLA School of Medicine. She is Director of the UCLA Pediatric Pain Program and Associate Director of the Patients & Survivors Section, Cancer Prevention and Control Research Branch of the UCLA Jonsson Comprehensive Cancer Center. She has well over one hundred scientific publications, reviews and chapters in medical journals, and has lectured internationally.

http://www.webmd.com/content/article/1/1700_50465


--------------------
My website on IBS is www.ibshealth.com


Print     Remind Me     Notify Moderator    

Re: 11 year old daughter been in pain every night for a year! new
      #243837 - 02/03/06 10:11 AM
PaulineNZ

Reged: 02/02/06
Posts: 26


Thanks for the suggestions and info, but seaneric can you tell me what CFAP is, I have never heard of this abbreviation before.

Print     Remind Me     Notify Moderator    

Re: 11 year old daughter been in pain every night for a year! new
      #243838 - 02/03/06 10:20 AM
shawneric

Reged: 01/30/03
Posts: 1738
Loc: Oregon

CFAP is Chronic functional abdominal pain another one of the functional disorders without c or d or alternating.

Chronic Functional Abdominal Pain
By: Douglas A. Drossman, M.D.

http://www.aboutibs.org/Publications/CFAP.html

Diagnosing and Treating Patients with Refractory Functional Gastrointestinal Disorders

"Twelve key questions can be asked during the first visit to help determine the biopsychosocial nature of the condition and to help plan possible psychological referral or treatment.

1. Is the Pain Acute or Chronic?

Chronic pain is more strongly influenced than acute pain by higher brain centers or enhanced visceral sensation, so it is less likely that tissue pathology will be found with chronic pain. Thus, although acute pain is more likely to be associated with a single specific cause related to tissue damage, chronic pain has multiple, behavioral contributions. Acute pain is associated with physiologic arousal (such as tachycardia and diaphoresis) and anxiety, whereas chronic pain is associated with no arousal; the patient may even seem withdrawn or depressed [30].

For acute pain, peripherally acting analgesics and narcotics work well, and treatment includes rest. Recovery is expected after treating or removing the nociceptive source. For chronic pain, peripherally acting analgesics are not often helpful, narcotics are usually contraindicated, and treatment frequently involves increased physical activity and behavioral or psychopharmacologic treatment. Because recovery is rare, patients must learn to cope. However, with refractory pain, "sick-role" behavior can also be seen, in which the patient makes unconscious efforts to maintain the illness state.

2. Is There a Pain History?

Is this the only episode of significant pain, or does the patient have a long-standing history of painful gastrointestinal or other symptoms? Patients with frequent symptom episodes and visits to physicians for problems such as "gastroenteritis," back pain, headache, and dysmenorrhea communicate a long-standing pattern of somatic sensitivity, pain behaviors, or both. This gives a poorer prognosis for recovery.

3. Is the Pain Associated with Altered Gut Physiology?

Patients with intermittent pain that is typically brought on by eating, stress, or menses; that is associated with change in bowel function; or that is relieved by defecation or vomiting have a functional gastrointestinal disorder (such as the irritable bowel syndrome, functional dyspepsia, or functional constipation) [4, 13]. In these patients, the pain is related to changes in gut physiology that respond to treatments directed at the gut (such as cisapride [31, 32] and anticholinergic agents e). Conversely, constant pain not associated with changes in gastrointestinal function (such as chronic functional abdominal pain [13]) is modulated by higher brain centers; thus, gut-acting agents are not helpful. Treatment involves behavioral methods, psychopharmacologic methods, or both.

4. What is the Patient's Understanding of the Illness?

All patients hold certain perceptions about their illnesses and have expectations for treatment: their "cognitive schema" or belief system [34, 35]. If their beliefs are realistic and consistent with physician expectations, a mutually acceptable treatment plan is likely. However, many patients referred to medical centers have unrealistic beliefs about cause and treatment and are not satisfied by negative findings or the physician's reassurance. For example, the patient's belief that "there must be a medical (that is, 'organic') explanation for this pain" leads to continued medical consultations, hypervigilance to bodily sensations, and increased anxiety and arousal when no "cause" is found. A perpetual state of anxiety, physiologic arousal, and sensitivity to pain ensues, which only confirms (from the patient's perspective) the evidence for a physical cause."

http://www.annals.org/cgi/content/full/123/9/688





--------------------
My website on IBS is www.ibshealth.com


Print     Remind Me     Notify Moderator    

Re: Sorry she's suffering new
      #243839 - 02/03/06 10:24 AM
PaulineNZ

Reged: 02/02/06
Posts: 26


Hi, thanks for posting. It is heartbreaking seeing her suffer every night. We feel so useless and helpless, Mum and Dad are the ones that can fix anything right? Well in a kids eyes anyway until they can't!

If you have tested positive for gluten sensitivity you should be on a gluten free diet as as I understand it, this is the precursor to coeliacs.

g/f products don't contain so much roughage, that is why we use bread with flaxseeds etc in it.

She had negative coeliac bloods then went gluten free, this was the first time we had her pain free during the day as well in 6 months. The private specialist has tested her for some gene thingie (clever eh?) to see if it is gluten or the wheat. We find out the results to these new tests and other next Tuesday.

I will talk to her about strictly adhering to the diet, I know that if she could get pain free at night, it would make her want to keep on the diet, but so far everything we have tried has made no difference.

Thanks again

Print     Remind Me     Notify Moderator    

Re: 11 year old daughter been in pain every night for a year! new
      #243865 - 02/03/06 11:09 AM
jblake

Reged: 05/20/05
Posts: 41
Loc: East Coast, USA

I am IBS-C and have had many hospital bouts due to constipation/impaction before I finally (hopefully) figured things out. Yesterday was one year since my last hospital stay (for three years I was in about every three to six months includng three surgeries).

How much insoluable fiber does she eat? I had to basically delete insoluable fiber from my diet. It just made the constipation worse (pain, gas, etc)no matter how much water I drank or exercise I got. All those fiber supplements and raw vegetables and fruit (even eating soluable fiber first)just "cemented" everything in my gut. The last diagnoses (after many) is slow transit colon which certainly makes the most sense. I take Zelnorm and Milk of Magnesia daily.

I eat soluable fiber including cooked fruit and "smashed" vegeetables daily now. I don't eat any dairy-all soy although too much of that can give me lots of gas. I have learned to live with all the funky stomach noises (especially since I am not in pain anymore)but then I am 49 years old. I can only imagine that it would be very tough as a preteen.

I snack all day long, very few "meals". I drink lots of water/peppermint tea/fennel tea/other herbal teas and cranberry juice.

One of the best tricks I learned when in pain (mine was always-and on occassion still is- located on my left side, sometimes near the center below my belly button and/or under left ribcage)is to lie on my left side with my knees drawn up to my chest. And take long, slow, deep breaths. Maybe you can help her with the breathing, it does help to have a coach. It also gets the mind focused on something other than the pain.

Good luck. Hope you find something in all this information that helps.

Print     Remind Me     Notify Moderator    

soy-free, dairy-free, gluten-free parmesan new
      #243901 - 02/03/06 11:52 AM
Maile

Reged: 01/30/06
Posts: 17
Loc: California

i agree with what others have said: completely eliminating the dairy may help a lot. Being soy-free makes that tougher, but she doesn't have to be totally deprived.

I haven't tried this, but it might be a good replacement for some of the dairy she's been eating. (though the yeast and fat might be triggers). I think you could probably get it by mail order in NZ.

parma

Print     Remind Me     Notify Moderator    

Pages: 1 | 2 | 3 | 4 | 5 | 6 | (show all)

Extra information
0 registered and 836 anonymous users are browsing this forum.

Moderator:  Heather 

Print Thread

Permissions
      You cannot post until you login
      You cannot reply until you login
      HTML is enabled
      UBBCode is enabled

Thread views: 39250

Jump to

| Privacy statement Help for IBS Home

*
UBB.threads™ 6.2


HelpForIBS.com BBB Business Review