Hi Heather, Sorry to hear how bad a time of it you have been having. I found your thread searching Google for help on this condition and so hope I am not to late and have missed you.
Without saying too much I am in very much the same boat as you with the exact same problems. The only difference I have is the pain doesn't ever go as high up as my shoulder. Reading through your post I can tell we have lived the same life for the last few years based on the lengths you have went to no doubt out of desperation to try and find some relief.
I have had this since I was 13 and am now 30. The doctors are happy to just put it down to IBS as in your case and some places you read do seem to say it is classed as that as they cannot treat it any differently. I read somewhere on Google in China they actually recognise it as disorder of it's own and perform surgery on people. I find it hard to ever believe my problems will be solved by any tablet etc.
I have had every test going and funnily enough when I had a camera to check my colon when they filled me with gas even though I was sedated I can still remember the pain and it being the exact pain I have felt so many times before. I saw in the report it was in the exact area where the Splenic flexure is but this was put down to IBS.
Would be nice to hear if you managed to get anywhere with this. I like you have tried so many things to help myself and got nowhere really. I do know of a painkiller that if took when you first feel the pain does tend to do the job co-codamol soluble only as the pain relief is near instant. Tablets that are in tablet form can sometimes react badly for me.
The other thing that helps and I shouldn't admit it but every now and again I have a little bit of marijuana for emergencies. I discovered it by accident years ago and as shameful as it is it really is the closest to a miracle for me. It literally feels like putting a pin in a baloon at times. It again isn't ideal but I am sure as you know the pain is just unbearable and unfortunately the likes of Buscopan and Mebeverine which the doctors give out would only leave me pacing the room clutching my stomach in agony if I relied on them.
Would be nice to hear if you have seen any improvement and what has helped.
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Re: Follow the SAME TREATMENT GUIDELINES for IBS as for SPLENIC FLEXURE SYNDROME?
