Reged: 01/19/05
Posts: 54
Loc: Chapel Hill, North Carolina
I totally understand your frustration. I sometimes wish I had a more serious disorder that had a fix. My sister has Ulcerative colitis and had a severe flare up about 6 years ago when she was hospitalized. But now she is on meds and doesnt have any problems. But there is always the risk of another flare up. So really I guess I am fortunate. It is annoying how people dont understand this and there is not any good treatment. My dietary needs seem to change all the time so no one knows what to think. A big frustration is also not feeling social at all. I know I will have terrible bloating if I am over at anyones house for more than a little while and definitely cant eat most things at most mainstream restaurants. Plus, I dont feel like going out to bars when I dont drink anymore. (I am 24, in med school, so some of my friends go out occasionally). I havent been out this whole year. I also get so tired of having to carry a giant bag of food around when I go away for a couple days! But there is no way we can expect to find what we need where other people are eating. I just hate how I feel like this concern over food/ bowel movements controls my life. It regulates all my actions, emotions. I have had a really great past two days, went 4 times yesterday and once today!! I am C so this was huge! I attribute this to my staying home from class and studying at home so I was on my own time. Also have started taking two probiotic capsules a day.
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Re: desperate for anything to help
